Browsing by Author "Pereira, Sandra Martins"
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- Abordagem ética ao uso de antibióticos em cuidados paliativos: revisão sistemática de literaturaPublication . Pereira, Sandra Martins; Brandão, Patrícia Joana de Sá; Araújo, Joana; Carvalho, Ana Sofia; Hernández-Marrero, Pablo
- Análise secundária de dados qualitativos na investigação em Cuidados Paliativos: Recomendações baseadas na evidênciaPublication . Pereira, Sandra Martins; Hernández-Marrero, Pablo
- Are portuguese healthcare professionals willing to hasten death at a patient´s request? A vignette-survey study in palliative care congresses in PortugalPublication . Pereira, Sandra Martins; Carvalho, Ana Sofia; Hernández-Marrero, Pablo
- Are the ethics procedures reported in clinical dementia research in palliative care sound? results from a scoping reviewPublication . Hernández-Marrero, Pablo; Pereira, Sandra Martins; Araújo, Joana; Carvalho, Ana Sofia
- Bereavement during the COVID-19 pandemic as a bioethical concern: a systematic integrative review with narrative synthesisPublication . Mucache, Éden Sansão; Pereira, Sandra Martins; Hernández-Marrero, Pablo
- A bioethical perspective on the meanings behind a wish to hasten death: a meta-ethnographic reviewPublication . Borges, Paulo J.; Hernández-Marrero, Pablo; Pereira, Sandra MartinsBackground: The expressions of a “wish to hasten death” or “wish to die” raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the “wish to hasten death/die” based specifically on the ethical principles of autonomy, dignity, and vulnerability. The aim of this review is to understand if and how the meanings behind the “wish to hasten death/die” relate to and are interpreted in light of ethical principles in palliative care. Methods: We conducted a meta-ethnographic review according to the PRISMA guidelines and aligned with Noblit and Hare’s framework. Searches were performed in three databases, Web of Science, PubMed, CINAHL, with no time restrictions. Original qualitative studies exploring the meanings given by patients, family caregivers and healthcare professionals in any context of palliative and end-of-life care were included. A narrative synthesis was undertaken. PROSPERO registration CRD42023360330. Results: Out of 893 retrieved articles, 26 were included in the analysis, accounting for the meanings of a total of 2,398 participants. Several factors and meanings associated with the “wish to hasten death” and/or “wish to die” were identified and are mainly of a psychosocial and spiritual nature. The ethical principles of autonomy and dignity were the ones mostly associated with the “wish to hasten death”. Ethical principles were essentially inferred from the content of included articles, although not explicitly stated as bioethical principles. Conclusions: This meta-ethnographic review shows a reduced number of qualitative studies on the “wish to hasten death” and/or “wish to die” explicitly stating ethical principles. This suggests a lack of bioethical reflection and reasoning in the empirical end-of-life literature and a lack of embedded ethics in clinical practice. There is a need for healthcare professionals to address these topics compassionately and ethically, taking into account the unique perspectives of patients and family members. More qualitative studies on the meanings behind a wish to hasten death, their ethical contours, ethical reasoning, and implications for clinical practice are needed.
- Burnout em médicos e enfermeiros: estudo quantitativo e multicêntrico em unidades de cuidados paliativos em PortugalPublication . Pereira, Sandra Martins; Teixeira, Carla Margarida; Ribeiro, Orquídea; Hernández-Marrero, Pablo; Fonseca, António M.; Carvalho, Ana SofiaTheoretical Framework: Systematic contact with death is considered a risk factor for burnout in health, particularly for doctors and nurses who develop their professional activity in palliative care. Objectives: To study the syndrome of burnout in these professionals in Portugal. Methodology: A multicenter quantitative survey study. Results: Out of 142 professionals, 88 returned the completed questionnaire; of these, only 3% were in burnout and 13% at high risk of developing this syndrome. Professing a religion (p=.005) and having post-graduate education/training in palliative care (p=.011) were significantly and inversely associated with burnout. Conflicts with other professionals (p=.012) were significantly associated with developing this syndrome. Conclusion: Although the percentage of professionals with high levels of burnout in palliative care is low, there are risk factors that can be optimized to promote a higher well-being state among professionals.
- Burnout in end-of-life care: Results from a multicenter comparative study between intensive and palliative care unitsPublication . Pereira, Sandra Martins; Teixeira, Carla Margarida; Hernández-Marrero, Pablo; Carvalho, Ana Sofia
- Burnout in end-of-life care: work-related experiences in intensive and palliative care units and relation to burnoutPublication . Teixeira, Carla Margarida; Pereira, Sandra Martins; Hernández-Marrero, Pablo; Carvalho, Ana Sofia
- Burnout in palliative care: a systematic reviewPublication . Pereira, Sandra Martins; Fonseca, António M.; Carvalho, Ana SofiaBurnout is a phenomenon characterized by fatigue and frustration, usually related to work stress and dedication to a cause, a way of life that does not match the person’s expectations. Although it seems to be associated with risk factors stemming from a professional environment, this problem may affect any person. Palliative care is provided in a challenging environment, where professionals often have to make demanding ethical decisions and deal with death and dying. This article reports on the findings of a systematic review aimed at identifying described burnout levels in palliative care nurses and physicians, and the related risks and protective factors. The main findings indicate that burnout levels in palliative care, or in health care settings related to this field, do not seem to be higher than in other contexts.