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Abstract(s)
As doenças e os processos crónicos são doenças progressivas, incertas, intrusivas que
levam muitas vezes à dependência, e à consequente institucionalização. Vários estudos revelam
que os cuidadores informais mantêm a prestação de alguns cuidados após a institucionalização,
devido à maioria dos cuidadores manterem o seu papel de cuidador informal.
Os objetivos gerais do presente estudo são: caraterizar os cuidadores informais dos
utentes institucionalizados em relação ao seu papel na instituição, às suas necessidades,
sobrecarga e perceção de suporte social; contribuir para um melhor ajustamento da instituição
na resposta às necessidades e sobrecarga dos cuidadores informais.
A amostra é constituída por 40 cuidadores informais de utentes institucionalizados.
Foram utilizados os seguintes instrumentos: Questionário Sociodemográfico, Critical Care
Family Needs Inventory, o Questionário de Avaliação da Sobrecarga do Cuidador Informal, e
a Escala de Satisfação com o Suporte Social.
A partir dos resultados, é possível concluir que os cuidadores informais permaneceram
envolvidos com o seu familiar após a institucionalização, mantendo o seu papel de cuidador
informal; as necessidades sentidas pelo cuidador informal do utente institucionalizado são
similares àquelas sentidas pelos cuidadores que cuidam no domicílio; apesar da
institucionalização, os cuidadores informais relatam sobrecarga persistente e o suporte social
apresenta-se como mediador da mesma.
The chronic processes and diseases are progressive, uncertain, intrusive and often lead to dependence, and consequent institutionalization. Studies show that informal caregivers keep providing some care after institutionalization, maintaining their role as informal caregiver. This study aims to characterize the informal caregivers of institutionalized patients in relation to their role in the institution, their needs, burden, and perception of social support; contribute to a better matching of the institution in meeting the needs and burden of informal caregivers The sample of this study consists of 40 informal caregivers of institutionalized patients. The following instruments were used: Sociodemographic Questionnaire, Critical Care Family Needs Inventory, Assessment questionnaire of the informal caregiver burden, and the satisfaction scale with the social support. From the results, we conclude that informed caregivers remain involved with their familiar after the institutionalization, maintaining the role as informal caregiver. The needs experienced by informal caregivers of institutionalized patients are similar to those experienced by caregivers that care at home, and despite the institutionalization, informal caregivers report persistent burden, and the social support presents itself as a mediator of the burden.
The chronic processes and diseases are progressive, uncertain, intrusive and often lead to dependence, and consequent institutionalization. Studies show that informal caregivers keep providing some care after institutionalization, maintaining their role as informal caregiver. This study aims to characterize the informal caregivers of institutionalized patients in relation to their role in the institution, their needs, burden, and perception of social support; contribute to a better matching of the institution in meeting the needs and burden of informal caregivers The sample of this study consists of 40 informal caregivers of institutionalized patients. The following instruments were used: Sociodemographic Questionnaire, Critical Care Family Needs Inventory, Assessment questionnaire of the informal caregiver burden, and the satisfaction scale with the social support. From the results, we conclude that informed caregivers remain involved with their familiar after the institutionalization, maintaining the role as informal caregiver. The needs experienced by informal caregivers of institutionalized patients are similar to those experienced by caregivers that care at home, and despite the institutionalization, informal caregivers report persistent burden, and the social support presents itself as a mediator of the burden.
Description
Keywords
Institucionalização Cuidador Sobrecarga Necessidades Suporte-social Institutionalization Caregiver Burden Needs Social support