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As doenças alérgicas respiratórias pediátricas são cada vez mais frequentes e têm impactos significativos para as crianças e suas famílias, levando a que a família se tenha de adaptar às exigências da condição de saúde dos seus filhos. Reconhecendo o papel da família para o controlo destas doenças, tem sido salientada a importância de compreender a adaptação das próprias famílias e também a necessidade de utilizar indicadores positivos.
O presente estudo teve como objetivo compreender o bem-estar de famílias de crianças com doenças alérgicas, considerando o papel de variáveis individuais, parentais e familiares e ainda o papel da qualidade do sono da criança na relação entre estes fatores e o bem-estar da família. Participaram neste estudo 139 pais/cuidadores de crianças com doenças alérgicas respiratórias (asma ou rinite), que preencheram questionários para avaliar o temperamento, fatores de resiliência da família, a satisfação conjugal, a autorregulação parental, o bem-estar familiar e a severidade da asma. Foram também recolhidos dados sociodemográficos e clínicos.
Os resultados apoiaram a importância dos recursos parentais e familiares para o bem-estar familiar, assim como a relevância de considerar outros indicadores de saúde e funcionamento da criança, neste caso a qualidade do sono, para compreender o bem-estar das famílias. Os recursos familiares revelaram ser fatores positivos da família que contribuem para a perceção de bem-estar familiar pelos cuidadores. O subsistema conjugal e a autorregulação parental também se relacionaram com o bem-estar familiar revelando que ambos influenciam o modo como se responde aos desafios da paternidade. A qualidade do sono foi ainda mediadora e moderadora na relação entre os recursos familiares e o bem-estar familiar.
Os resultados encontrados sugerem recursos potenciais para a adaptação dos pais e também áreas de vulnerabilidade. A abordagem de fatores do sistema familiar e a consideração da qualidade do sono podem ser cruciais para promover o bem-estar de famílias de crianças com doenças alérgicas respiratórias.
Pediatric respiratory allergic diseases are increasingly common and affect children and their families, leading to families having some change in the health conditions of their children. Recognizing the role of the family in controlling these diseases, the importance of understanding families’ adaptation and the need to use positive indicators has been highlighted. The present study aimed to understand children with allergic diseases well-being, considering the role of individuals, parents and family members and the role of children's sleep quality in the relationship between these factors and family well-being. 139 children with respiratory diseases (asthma or rhinitis) parents/caregivers participated in this study by completing questionnaires to measure temperament, family resilience factors, marital satisfaction, parental self-regulation, family well-being and asthma severity. Sociodemographic and clinical data were also collected. The results support the importance of parental and family resources for family well-being, as well as the importance of considering other child health indicators and functioning, in this case, sleep quality to understand families well-being. Family resources revealed positive family factors that contribute to the caregivers' perception of family well-being. The marital subsystem and parental self-regulation were also related to family well-being, revealing that both influence the way we respond to parenting challenges. Sleep quality was also mediating and moderating in the relationship between family resources and family well-being. The results suggest potential resources for parents’ adaptation as well as the areas of vulnerability. Addressing family system factors and considering sleep quality can be crucial in promoting the well-being of children with allergical diseases families.
Pediatric respiratory allergic diseases are increasingly common and affect children and their families, leading to families having some change in the health conditions of their children. Recognizing the role of the family in controlling these diseases, the importance of understanding families’ adaptation and the need to use positive indicators has been highlighted. The present study aimed to understand children with allergic diseases well-being, considering the role of individuals, parents and family members and the role of children's sleep quality in the relationship between these factors and family well-being. 139 children with respiratory diseases (asthma or rhinitis) parents/caregivers participated in this study by completing questionnaires to measure temperament, family resilience factors, marital satisfaction, parental self-regulation, family well-being and asthma severity. Sociodemographic and clinical data were also collected. The results support the importance of parental and family resources for family well-being, as well as the importance of considering other child health indicators and functioning, in this case, sleep quality to understand families well-being. Family resources revealed positive family factors that contribute to the caregivers' perception of family well-being. The marital subsystem and parental self-regulation were also related to family well-being, revealing that both influence the way we respond to parenting challenges. Sleep quality was also mediating and moderating in the relationship between family resources and family well-being. The results suggest potential resources for parents’ adaptation as well as the areas of vulnerability. Addressing family system factors and considering sleep quality can be crucial in promoting the well-being of children with allergical diseases families.
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Adaptação da família Doenças alérgicas pediátricas Satisfação conjugal Autorregulação parental Qualidade do sono Bem-estar familiar Family adaptation Pediatric allergic diseases Marital satisfaction Parental self-regulation Sleep quality Family welfare