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Abstract(s)
Introdução: O diagnóstico de uma doença crónica em contexto pediátrico gera um grande impacto na criança e nos pais, alterando as dinâmicas familiares com repercussões a vários níveis, onde a esperança parental sofre diversas oscilações. É importante que os profissionais de saúde apoiem os pais a encontrar estratégias promotoras de esperança, utilizando os instrumentos terapêuticos ao seu alcance. As cartas terapêuticas são um instrumento terapêutico utilizado pelos profissionais de saúde para, entre outros motivos, fortalecer a relação terapêutica. Dada a escassez de estudos sobre a relação da esperança dos pais de crianças com doença crónica e da utilização das cartas terapêuticas como estratégia promotora de esperança, tornou-se importante a realização deste estudo para a compreensão dessa relação.
Material e métodos: A investigação é de natureza qualitativa. A população foi constituída por dez pais de crianças com doença crónica admitidas num serviço de pediatria. A amostra populacional é não probabilística e intencional. A recolha de dados contemplou a caracterização sociodemográfica, os dados obtidos no grupo focal para a elaboração das cartas terapêuticas e a entrevista semiestruturada.
Resultados: As cartas terapêuticas influenciaram a esperança dos pais das crianças com doença crónica, promovendo-a e reforçando-a, com base na partilha de esperança com os profissionais de saúde, no apoio e disponibilidade dos mesmos, no reconhecimento das competências parentais e no reforço das forças pessoais ao reconhecer outras adversidades que ultrapassaram.
Conclusão: Com este estudo concluiu-se que as cartas terapêuticas são uma estratégia promotora de esperança, sendo possível a sua operacionalização e utilização pelos enfermeiros na sua prática de cuidados às crianças com doença crónica e às suas famílias, como um instrumento terapêutico, para o reforço da relação terapêutica e para a promoção de esperança parental.
Introduction: The diagnosis of a chronic disease in pediatric settings generates a large impact on the child and parents, changing family dynamics affecting the various levels where parental hope undergoes several oscillations. It is important for health professionals to support parents to find strategies that promote hope, using therapeutic tools at your range. Therapeutic letters are a therapeutic tool used by health professionals to, among other things, strengthen the therapeutic relationship. Given the scarcity of studies on the relationship of hope of parents of children with chronic disease and the use of therapeutic letters as a promoter strategy of hope, it became important to conduct this study to understand this relationship. Methods: The research is qualitative in nature. The population consisted of ten parents of children with chronic illness admitted to a pediatric service. The population sample is not probabilistic and intentional. Data collection included the sociodemographics, the data obtained in the focus group for the development of therapeutic letters and semi-structured interview. Results: Therapeutic letters influenced the hope of parents of children with chronic illness, promoting it and reinforcing it based on the sharing hope with health professionals, support and availability of the same, in recognition of parenting skills and strengthening personal strengths to recognize other adversities that exceeded. Conclusion: With this study it was concluded that the therapeutic letters are a promoter strategy and its operation and use by nurses in their practice of childcare with chronic illness and their families, as a therapeutic instrument for the enhancing of the therapeutic relationship and the promotion of parental hope.
Introduction: The diagnosis of a chronic disease in pediatric settings generates a large impact on the child and parents, changing family dynamics affecting the various levels where parental hope undergoes several oscillations. It is important for health professionals to support parents to find strategies that promote hope, using therapeutic tools at your range. Therapeutic letters are a therapeutic tool used by health professionals to, among other things, strengthen the therapeutic relationship. Given the scarcity of studies on the relationship of hope of parents of children with chronic disease and the use of therapeutic letters as a promoter strategy of hope, it became important to conduct this study to understand this relationship. Methods: The research is qualitative in nature. The population consisted of ten parents of children with chronic illness admitted to a pediatric service. The population sample is not probabilistic and intentional. Data collection included the sociodemographics, the data obtained in the focus group for the development of therapeutic letters and semi-structured interview. Results: Therapeutic letters influenced the hope of parents of children with chronic illness, promoting it and reinforcing it based on the sharing hope with health professionals, support and availability of the same, in recognition of parenting skills and strengthening personal strengths to recognize other adversities that exceeded. Conclusion: With this study it was concluded that the therapeutic letters are a promoter strategy and its operation and use by nurses in their practice of childcare with chronic illness and their families, as a therapeutic instrument for the enhancing of the therapeutic relationship and the promotion of parental hope.
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Keywords
Cartas terapêuticas Criança Doença crónica Pais Enfermagem Cuidados paliativos Esperança Therapeutic letters Child Chronic disease Parents Nursing Palliative care Hope