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O presente estudo qualitativo busca compreender aspectos específicos vivenciados pelas famílias nucleares, mais precisamente pelas figuras parentais, de crianças e jovens com deficiência, incluindo seus medos, frustrações, necessidades, desafios, superações e expectativas, com foco especial na rede de apoio, explorando ainda o potencial da mediação de conflitos e a possibilidade da sua aplicação nos contextos em que estas famílias estão inseridas. Os dados coletados nas 12 entrevistas semiestruturadas, realizadas com pelo menos um membro de cada família nuclear, pretenderam conhecer contributos mais precisos dos participantes de acordo com suas experiências pessoais e foram enquadrados com o conhecimento científico sobre o tema. Este estudo culmina na proposta do Projeto Systemas – mediação sociofamiliar para familiares de pessoas com deficiência, o qual tem como objetivos contribuir para a melhoria da qualidade de vida e dos níveis de bem-estar do público-alvo da investigação e intensificar o compromisso e a responsabilidade por parte da sociedade e da rede de apoio dessas famílias.
The present qualitative study searches to comprehend the specific aspects of the nuclear families, more precisely of the parental figures and their children and adolescents with disabilities. Some aspects are fears, frustrations, challenges, needs, and expectations focusing on the social support network and also to explore the conflict mediation and its possibilities of application in the contexts in which the families live. The collected data from the 12 semistructured interviews, with at least one nuclear family member, aim to understand more precise contributions from the participants' personal experiences, and were set up according to the theme’s scientific knowledge. Combining both parts resulted in consolidating the Projeto Systemas - social-family mediation for families of people with disabilities, which aims to improve the quality of life and the well-being levels of the study's target audience and intensify the commitment and responsibility from the community and the social support network.
The present qualitative study searches to comprehend the specific aspects of the nuclear families, more precisely of the parental figures and their children and adolescents with disabilities. Some aspects are fears, frustrations, challenges, needs, and expectations focusing on the social support network and also to explore the conflict mediation and its possibilities of application in the contexts in which the families live. The collected data from the 12 semistructured interviews, with at least one nuclear family member, aim to understand more precise contributions from the participants' personal experiences, and were set up according to the theme’s scientific knowledge. Combining both parts resulted in consolidating the Projeto Systemas - social-family mediation for families of people with disabilities, which aims to improve the quality of life and the well-being levels of the study's target audience and intensify the commitment and responsibility from the community and the social support network.
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Palavras-chave
Famílias de pessoas com deficiência Necessidades de famílias de pessoas com deficiência Luto ideal Mediação de conflitos Families of people with disabilities Needs of families of people with disabilities Ideal bereavement Conflict mediation