Browsing by Author "Viana, Clara Roquette"
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- Associações de apoio à pessoa com deficiência ou incapacidade: um importante recurso nas políticas sociaisPublication . Viana, Clara Roquette; Figueiredo, Amélia SimõesIntrodução: As alterações decorrentes das mudanças na sociedade e os direitos alcançados pelas pessoas portadoras de deficiência e incapacidade são grandes conquistas. Estas aquisições passam pelo trabalho das Associações. Objetivos: Identificar as Associações de apoio à pessoa com deficiência ou incapacidade na região de Lisboa, fazer o retrato social e demográfico das mesmas. Métodos: O estudo integrou numa primeira fase a recolha de dados percorrendo a informação disponibilizada nos sites, e numa segunda centrou- se na obtenção de informação relativamente a cada Associação. Resultados: A 1ª Associação nasce no final do séc. XIX, em 1888, e a última surge em 2005. Das 24 Associações de apoio à pessoa/família com deficiência ou incapacidade que emergiram num lastro de 50 anos, encontrámos 8 (33%) Associações que apresentam projetos no âmbito da intervenção precoce. Conclusão: As conclusões apontam para a importância que estas Associações têm no tecido social onde se constituem como peritos em matéria de deficiência e como entidades de maior competência para a sensibilização da sociedade, com vista a promover uma melhor qualidade de vida para estas pessoas.
- Hope aspects of the women’s experience after confirmation of a high-risk pregnancy condition: a systematic scoping reviewPublication . Antunes, Mónica; Viana, Clara Roquette; Charepe, ZaidaBackground: Pregnancy is a period of transformation, hope, expectation, and worry for women and their families. A high-risk pregnancy refers to a pregnancy in which the mother and/or fetus are at greater-than-normal risk of complications, and it evokes a range of emotional and psychological experiences that largely depend on the care and support provided by health professionals. The purpose of this review is to summarize the existing literature on the lived experience of hope in women facing a high-risk pregnancy related to their own health and/or medical conditions related to the fetus. Methods: This review followed the Joanna Briggs Institute’s methodology. No limits on a date were applied to the search. Identified titles and abstracts were screened to select original reports and were cross-checked for any overlap of cases. We included studies that emphasized the experience of hope of pregnant women dealing with a pregnancy complication. Main Results: According to the results of the present scoping review, we found two main dimensions: women experiencing a high-risk pregnancy themselves and prenatal diagnosis. In both cases, the women were in a dilemma between hope and hopelessness. Conclusion: The findings demonstrate that women facing high-risk pregnancies struggle with multiple fears and concerns about their own health and the fetus’s health. Further research is needed to identify best practices for the care provided to the vulnerable populations.
- O papel da esperança como recurso emocional da mulher após diagnóstico pré natal: análise de estudos qualitativosPublication . Antunes, Mónica; Palma, Sara; Viana, Clara Roquette; Nunes, Inês Robalo; Charepe, Zaida
- Parenting of children with autism spectrum disorder: a grounded theory studyPublication . Viana, Clara Roquette; Caldeira, Sílvia; Lourenço, Margarida; Figueiredo, Amélia SimõesBackground: Parenting a child with an autism spectrum disorder (ASD) involves several processes and emotions during this transition. In addition to the family's natural transition when a child is born, the family of a child with ASD has to deal with the particularities of the disability, its characteristics, and its evolution. Methods: This is a qualitative grounded theory study aiming to deepen the knowledge about the process of parenting children with ASD. Data were collected using interviews and observations of nine couples and one single mother. Results: Coding and analysis led to the main theme, which is as follows: parenting of children with ASD as representative of the parents' transformation while caring for the child, also based on adaptation throughout this experience. Conclusions: Parenting is a dynamic process, grounded on the interaction of different contexts, such as family, education, health, and society, and on the co-construction of different times and episodes. These characteristics underline the complex and individual nature of parenting children with autism, which requires specific assessments and interventions by nurses when caring for these families, whether in a family nursing context, community nursing, and pediatric nursing or midwifery.