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Introdução: Reconhecendo os benefícios da abordagem dos cuidados paliativos no adulto, emergem os cuidados paliativos pediátricos, com a adequada abordagem das necessidades biopsicossociais e espirituais da criança, e o apropriado controlo de sintomas. Este estudo irá incidir sobre a dor em pediatria, e a perceção de profissionais, pais e crianças, sobre os obstáculos ao tratamento da mesma. Metodologia: Contando com um questionário específico para cada população: profissionais de saúde, pais/cuidadores e crianças e jovens, foi realizado num hospital central, da região sul de Portugal, no período temporal de março a julho de 2024. Resultados: Obteve-se as respostas de 60 profissionais de saúde, 25 pais/cuidadores e 18 crianças/jovens. O questionário abordou asserções sobre dor e opióides, opiniões sobre consumo de opióides e sentimentos que estes despertam, quer na sua manipulação (profissionais de saúde) quer quando pensam/ouvem sobre estes (pais/cuidadores e crianças). Com a perceção muito semelhante entre os três grupos, sobre a elevada importância da dor, e o conhecimento sobre a mesma; assim como a lacuna em conhecimento terapêutico nomeadamente em opióides, reconhecendo também a importância de uma abordagem global, com formas não farmacológicas. Conclusão: Destaca-se a evidência também obtida noutros estudos, sobre a importância em investimento em formação e educação sobre a dor e sua adequada abordagem terapêutica, a importância da implementação de protocolos de atuação, a desmistificação sobre os opióides e a disseminação de informação não só junto dos profissionais, mas também incluindo o utente e a sua família.
Introduction: Recognizing the benefits of the palliative care approach in adults, pediatric palliative care emerges, with the appropriate approach to the biopsychosocial and spiritual needs of the child, and the appropriate control of symptoms. This study will focus on pain in paediatrics, and the perception of professionals, parents and children, about the obstacles to their treatment. Methodology: With a specific questionnaire for each population: health professionals, parents/caregivers, and children and young people, it was carried out in a central hospital, in the southern region of Portugal, from March to July 2024. Results: Responses were obtained from 60 health professionals, 25 parents/caregivers and 18 children/young people. The questionnaire addressed assertions about pain and opioids, opinions about opioid consumption and feelings they arouse, both in their handling (health professionals) and when they think/hear about them (parents/caregivers and children). With a very similar perception between the three groups, about the high importance of pain, and knowledge about it; as well as the gap in therapeutic knowledge, namely in opioids, also recognizing the importance of a global approach, with non-pharmacological forms. Conclusion: The evidence also obtained in other studies on the importance of investing in training and education on pain and its appropriate therapeutic approach, the importance of implementing action protocols, demystifying opioids and disseminating information not only among professionals, but also including the patient and his family, is highlighted.
Introduction: Recognizing the benefits of the palliative care approach in adults, pediatric palliative care emerges, with the appropriate approach to the biopsychosocial and spiritual needs of the child, and the appropriate control of symptoms. This study will focus on pain in paediatrics, and the perception of professionals, parents and children, about the obstacles to their treatment. Methodology: With a specific questionnaire for each population: health professionals, parents/caregivers, and children and young people, it was carried out in a central hospital, in the southern region of Portugal, from March to July 2024. Results: Responses were obtained from 60 health professionals, 25 parents/caregivers and 18 children/young people. The questionnaire addressed assertions about pain and opioids, opinions about opioid consumption and feelings they arouse, both in their handling (health professionals) and when they think/hear about them (parents/caregivers and children). With a very similar perception between the three groups, about the high importance of pain, and knowledge about it; as well as the gap in therapeutic knowledge, namely in opioids, also recognizing the importance of a global approach, with non-pharmacological forms. Conclusion: The evidence also obtained in other studies on the importance of investing in training and education on pain and its appropriate therapeutic approach, the importance of implementing action protocols, demystifying opioids and disseminating information not only among professionals, but also including the patient and his family, is highlighted.
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Keywords
Dor Opióides Profissionais de saúde Cuidadores Crianças Pain Opioids Health professionals Caregivers Children