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Innovations developed by patients and informal caregivers for needs associated to rheumatic diseases

2021-03-16Journal article Open access
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dc.contributor.authorJacinto, Maria João
dc.contributor.authorOliveira, Pedro
dc.contributor.authorCanhão, Helena
dc.date.accessioned2021-04-12T09:05:19Z
dc.date.available2021-04-12T09:05:19Z
dc.date.issued2021-03-16
dc.description.abstractUntil recently, innovation in healthcare was mainly achieved through the development of new drugs, therapies, and medical devices by big pharma and medtech companies; however, the innovative potential for this field is much broader. The patients and caregivers' role in healthcare is often associated with disease management, demand for their own illness data, and its exchange with other patients. However, the patients and caregivers' capacity to innovate to cope with limitations associated with their health condition is a growing phenomenon and starting to be supported by healthcare stakeholders to achieve a truly patient-centric system. Our previous research has shown that these uncommon innovators can develop a wide range of solutions, from simple adaptations and products to highly technological biomedical devices. In this paper, we present novel solutions developed by rheumatic patients, their caregivers, and collaborators, published on the “Patient Innovation” platform (https://patient-innovation.com/), with a focus on the innovator profile, the need that triggers the innovative process, the type of motivation behind the product, and the products developed. The most significant needs that motivate innovation are the will to increase the level of independence (71%) and to be able to perform daily routine activities (65%). In over 80% of cases, the fact that the market does not fully fulfill the needs felt during daily activities is the main motivation to innovate. It is thus concluded that there is room for innovation in rheumatic diseases with solutions developed by patients and informal caregivers that intend to solve needs that the healthcare market is not covering.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.3389/fmed.2021.647388pt_PT
dc.identifier.eid85103393396
dc.identifier.issn2296-858X
dc.identifier.pmcPMC8008059
dc.identifier.pmid33796544
dc.identifier.urihttp://hdl.handle.net/10400.14/32472
dc.identifier.wos000634711500001
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectDisabilitypt_PT
dc.subjectHealthpt_PT
dc.subjectPatient innovationpt_PT
dc.subjectRheumatic diseasespt_PT
dc.subjectUser innovationpt_PT
dc.titleInnovations developed by patients and informal caregivers for needs associated to rheumatic diseasespt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.titleFrontiers in Medicinept_PT
oaire.citation.volume8pt_PT
person.familyNameCardoso Jacinto
person.familyNameOliveira
person.familyNameCanhão
person.givenNameMaria João
person.givenNamePedro
person.givenNameHelena
person.identifier1170373
person.identifierB-2619-2016
person.identifier379800
person.identifier.ciencia-id0616-0478-AE83
person.identifier.ciencia-id721A-B048-4EDB
person.identifier.ciencia-id5A17-C6D9-DBC8
person.identifier.orcid0000-0001-6260-3198
person.identifier.orcid0000-0002-3898-2623
person.identifier.orcid0000-0003-1894-4870
person.identifier.ridB-2619-2016
person.identifier.ridC-9611-2018
person.identifier.scopus-author-id54383425300
person.identifier.scopus-author-id7102098014
person.identifier.scopus-author-id6602393492
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationc4772c2c-e3b6-4d64-8ed2-e9b239f8170d
relation.isAuthorOfPublication78111f30-5b58-4602-aa0e-b83519223cc3
relation.isAuthorOfPublication2d024ba9-16cc-4697-a629-195862e3e030
relation.isAuthorOfPublication.latestForDiscovery78111f30-5b58-4602-aa0e-b83519223cc3

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