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Advisor(s)
Abstract(s)
As doenças oncológicas são a principal causa de morte em crianças e jovens com idade
superior a um ano de idade. Por esse motivo, as investigações têm procurado compreender
o processo de luto dos irmãos saudáveis face à perda de um irmão doente, sendo mais
escassa a literatura focada no impacto psicológico que uma doença oncológica pode ter
no desenvolvimento de um irmão saudável, quando o irmão sobrevive. Neste sentido, o
presente estudo teve como principal objetivo compreender qual o impacto que a doença
oncológica de um irmão, vivida durante a fase infantojuvenil de ambos, teve no processo
de desenvolvimento e suas repercussões na vida do jovem adulto. A amostra foi
constituída por jovens adultos entre os 23 e 28 anos de idade que, durante a infância,
tiveram um irmão, também menor de idade, com doença oncológica, à qual sobreviveu.
Os dados foram recolhidos através de uma entrevista a que os participantes responderam
por escrito, incluindo dados sociodemográficos e perguntas abertas para exploração de
diferentes temas. Os resultados evidenciaram que ter um irmão com doença oncológica
durante a fase infantojuvenil tem consequências para o irmão saudável a curto, médio e
longo prazo. Maioritariamente, os participantes identificaram terem experimentado
dificuldades de gestão emocional, aumento do número de conflitos no ciclo familiar e
uma tendência para o desenvolvimento de sintomas de ansiedade. Alguns participantes
identificaram esta fase como sendo potencializadora de maior união fraternal e familiar,
tendo permitido que, com acompanhamento psicológico e abertura familiar, fosse
possível o desenvolvimento de uma melhor capacidade empática e de estratégias de
autorregulação emocional.
Oncological diseases are the leading cause of death in children and young people aged over one year. For this reason, investigations have been focused on understanding the healthy siblings grieving processes about the loss of a sibling, but there is a lack of literature focused to understanding the psychological impact a cancer disease may have on the development of a healthy sibling when him/her survives. In this regard, the main objective of the present study was to understand what impact the oncological illness of a sibling, experienced during the childhood phase of both, had on the development process and its repercussions on the life of the young adult. The sample was composed of young adults, aged between 23 and 28 years who, during childhood, had a sibling, also a minor, with cancer disease, who survived. The data was collected through an interview that participants responded to in writing, including sociodemographic data and open-ended questions to explore different themes. The results revealed that having a sibling with cancer disease during childhood and adolescence has short-, medium- and long-term consequences for the healthy sibling. Most participants identified experienced emotional management difficulties, increased conflicts in the family cycle and a tendency to develop anxiety symptoms. There were participants who identified this phase as having potential for greater fraternal and family unity, as well as having allowed, with psychological support and family openness, the development of a better empathic capacity and emotional self-regulation strategies.
Oncological diseases are the leading cause of death in children and young people aged over one year. For this reason, investigations have been focused on understanding the healthy siblings grieving processes about the loss of a sibling, but there is a lack of literature focused to understanding the psychological impact a cancer disease may have on the development of a healthy sibling when him/her survives. In this regard, the main objective of the present study was to understand what impact the oncological illness of a sibling, experienced during the childhood phase of both, had on the development process and its repercussions on the life of the young adult. The sample was composed of young adults, aged between 23 and 28 years who, during childhood, had a sibling, also a minor, with cancer disease, who survived. The data was collected through an interview that participants responded to in writing, including sociodemographic data and open-ended questions to explore different themes. The results revealed that having a sibling with cancer disease during childhood and adolescence has short-, medium- and long-term consequences for the healthy sibling. Most participants identified experienced emotional management difficulties, increased conflicts in the family cycle and a tendency to develop anxiety symptoms. There were participants who identified this phase as having potential for greater fraternal and family unity, as well as having allowed, with psychological support and family openness, the development of a better empathic capacity and emotional self-regulation strategies.
Description
Keywords
Cancro infantojuvenil Doença oncológica Impacto psicológico Irmão saudável Jovem adulto Infant-juvenile cancer Oncologic disease Infant-juvenile Psychological impact Healthy sibling Young adult