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Authors
Abstract(s)
A Paralisia cerebral (PC) trata-se de uma condição motora que afeta
significativamente as competências funcionais, podendo limitar a atividade e
participação e, consequentemente, a qualidade de vida (QV) de crianças e adultos.
A QV refere-se à perceção individual de bem-estar em vários domínios da vida.
O principal objetivo deste estudo foi avaliar as perceções sobre a QV de
adultos (e jovens) com PC (incluindo a relação com comprometimento motor,
género, ocupação, entre outras variáveis).
Nesta investigação não experimental, de cariz quantitativo e transversal,
seguindo uma via descritivo-correlacional, recorremos a uma amostra não
probabilística por conveniência, constituída por 53 adultos com PC (32 do sexo
masculino; 16-45 anos). Foi aplicado o WHOQOL-Bref para avaliar a QV. Todos os
participantes foram classificados no Gross Motor Function Classification System
(GMFSC).
Os dados obtidos evidenciam que são os inquiridos com habilitações
superiores, casados ou em união de facto, que vivem com a família, que trabalham
por conta de outrem ou estudam, que apresentam valores mais elevados sobre a
sua QV, com realce para o domínio das relações sociais.
Atendendo à classificação GMFCS, os inquiridos que apresentam valores
inferiores sobre a sua QV são os do grupo IV. Face ao exposto, consideramos que
os resultados obtidos permitiram conhecer os domínios específicos nos quais há
necessidade de intervir, de forma atempada, no sentido de potenciar a QV desta
população específica. Realça-se, nomeadamente, a importância do desenvolvimento
de competências sociais, estratégias de coping, bem como uma intervenção
determinante junto da comunidade onde cada um de nós se insere.
Cerebral Palsy (CP) is a motor condition that affects significantly functional skills, it may limit activity and participation and, consequently quality of life (QoL) of children and adults. The (QoL) refers to the individual perception of well-being in various fields of life. The aim of this study was to evaluate the perceptions of adult (QoL) (and young people) with CP (including the relationship with motor impairment, gender, occupation, among other variables). In this not experimental investigation, quantitative and transversal nature, following a descriptive correlational way, we use a non-probabilistic convenience sample consisting of 53 adults with CP (32 male, 16-45 years). WHOQOL-Bref was used to assess QoL. All participants were classified in the Gross Motor Function Classification System (GMFSC). The data provide evidence that are the respondents with higher qualifications, married or in union, living with family, working for others or study, which show higher values on their QoL, with emphasis on the field of social relationships. Considering the GMFCS classification, respondents who have lower values on their QoL are the Group IV. Thus, we believe that the results obtained allowed to know the specific areas where there is need to act in time in order to enhance the QoL of this specific population. It is emphasized the importance of developing social skills, coping strategies, as well as a decisive intervention in the community each one of us belong to.
Cerebral Palsy (CP) is a motor condition that affects significantly functional skills, it may limit activity and participation and, consequently quality of life (QoL) of children and adults. The (QoL) refers to the individual perception of well-being in various fields of life. The aim of this study was to evaluate the perceptions of adult (QoL) (and young people) with CP (including the relationship with motor impairment, gender, occupation, among other variables). In this not experimental investigation, quantitative and transversal nature, following a descriptive correlational way, we use a non-probabilistic convenience sample consisting of 53 adults with CP (32 male, 16-45 years). WHOQOL-Bref was used to assess QoL. All participants were classified in the Gross Motor Function Classification System (GMFSC). The data provide evidence that are the respondents with higher qualifications, married or in union, living with family, working for others or study, which show higher values on their QoL, with emphasis on the field of social relationships. Considering the GMFCS classification, respondents who have lower values on their QoL are the Group IV. Thus, we believe that the results obtained allowed to know the specific areas where there is need to act in time in order to enhance the QoL of this specific population. It is emphasized the importance of developing social skills, coping strategies, as well as a decisive intervention in the community each one of us belong to.
Description
Keywords
Paralisia cerebral Idade adulta Qualidade de vida Cerebral palsy Adulthood Quality of life