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Development and use of touch - screen computer - assisted self interviewing in Portuguese patients with chronic immune diseases: evaluation of an electronic version of SF - 36V2

dc.contributor.authorRibeiro, Claudia
dc.contributor.authorMoreira, Luis
dc.contributor.authorSilveira, Augusta
dc.contributor.authorSilva, Isabel
dc.contributor.authorGestal, Juan
dc.contributor.authorVasconcelos, Carlos
dc.date.accessioned2023-12-13T15:09:06Z
dc.date.available2023-12-13T15:09:06Z
dc.date.issued2010
dc.description.abstractAim:The major purpose of this study was to evaluate alternative automated methods of collecting data on health related quality of life (HR-QoL). In order to achieve this, we developed a study with the following objectives: (1) to evaluated the feasibility of electronic version in patients with different chronic pathologies of the immune system using Short Form 36version2 (SF-36v2), (2) to evaluate the construct validity of SF-36v2 using the electronic data capture, and (3) to compare electronic version questionnaires with paper questionnaires in terms of patients' acceptance, data quality, and reliability. Methods:Out-patients with chronic immune diseases (HIV infection, lupus, scleroderma, rheumatoid arthritis, Behçet and Sjögren), were randomly selected to completed electronic and paper SF-36v2 (n=50) before consultation in Clinical Immunology Unit, in Hospital Santo António-Centro Hospitalar do Porto (CI-HGSA). Results: There were very high correlations in SF-36v2 responses (p< .001) between the paper and electronic forms. Internal reliability coefficients (Cronbach's α) showed good internal consistency for all reported responses in either, computer and paper. There were no missing data in electronic version or paper. About 84% of the patients prefer to use the computer version in future. Conclusion: The electronic HR-QoL assessment is technically possible and it can provide reliable and valid clinically significant information which can either be used in routine care appointments.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.eid78650468419
dc.identifier.issn0303-464X
dc.identifier.urihttp://hdl.handle.net/10400.14/43328
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectElectronic data capturept_PT
dc.subjectImmune chronic diseasespt_PT
dc.subjectQuality of lifept_PT
dc.subjectSF-36v2pt_PT
dc.titleDevelopment and use of touch - screen computer - assisted self interviewing in Portuguese patients with chronic immune diseases: evaluation of an electronic version of SF - 36V2pt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage214pt_PT
oaire.citation.issue2pt_PT
oaire.citation.startPage208pt_PT
oaire.citation.titleActa Reumatologica Portuguesapt_PT
oaire.citation.volume35pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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