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Processo de planeamento antecipado de cuidados nas pessoas com doença oncológica avançada
| Name: | Description: | Size: | Format: | |
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| 7.67 MB | Adobe PDF |
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Introdução: O planeamento avançado de cuidados é um processo que suporta adultos de qualquer idade e estado de saúde na compreensão e partilha dos seus valores pessoais, objetivos de vida e preferências em relação a cuidados de saúde futuros. O seu objetivo principal é ajudar a garantir que as pessoas recebam cuidados consistentes com os seus valores e preferências perante situação de doença grave e crónica. Apesar de ser uma medida que promove o respeito e o valor pessoal, a prática clínica na Oncologia Médica pauta-se por uma escassa discussão sobre estes temas entre os profissionais de saúde e as pessoas com doença oncológica considerada avançada, incurável. Objetivo: Compreender as perceções dos médicos oncologistas e seus doentes num centro oncológico terciário em Portugal relativamente ao processo de planeamento antecipado de cuidados de saúde. Método: Desenvolveremos um estudo exploratório descritivo com base nos princípios da investigação qualitativa, colhendo dados através de uma entrevista semiestruturada a uma amostra de oncologistas e pessoas com diagnóstico de doença oncológica avançada. O tratamento dos dados será realizado recorrendo a métodos mistos, nomeadamente à análise temática indutiva para os dados de natureza qualitativa e a métricas para os dados de natureza quantitativa. Resultados: Os resultados serão apresentados e publicados em relatório, perspetivando-se a partir dos dados encontrados a elaboração de uma norma orientadora para profissionais de saúde que reflita a realidade das pessoas com doença oncológica avançada, em Portugal, espelhando os desejos e objetivos auscultados. Conclusão: Com o presente protocolo de investigação esperamos contribuir para o desenvolvimento do planeamento avançado de cuidados como ferramenta impreterível nos cuidados à pessoa com cancro em situação de doença avançada.
Introduction: Advance care planning is a process that supports adults of any age and health status in understanding and sharing their personal values and preferences concerning future health care. Its main goal is to help ensure that people receive medical care that is consistent and reflects their values, goals and preferences when faced with serious and chronic illness. Despite being a process that promotes respect and personal value, daily clinical practice in Medical Oncology is characterized by a lack of discussion about these issues between health professionals and patients with an oncological disease considered advanced, incurable. Objective: To comprehend the perceptions about advanced care planning of oncologists and their patients in a tertiary cancer center in Portugal. Method: We will develop an exploratory descriptive study based on the principles of qualitative research, collecting data through a semi-structured interview with a sample of oncologists and people diagnosed with advanced oncological disease. Data processing will be carried out using mixed methods, namely inductive thematic analysis for qualitative data and descriptive statistics for quantitative data. Results: The results will be presented and published in a report and based on the findings the authors aim to develop an orientation guide for health professionals reflecting the reality of people with advanced cancer in Portugal, including their desires and goals. Conclusion: With this investigation protocol, we hope to contribute to the development of advanced care planning as an essential tool in the care of cancer patients with advanced disease.
Introduction: Advance care planning is a process that supports adults of any age and health status in understanding and sharing their personal values and preferences concerning future health care. Its main goal is to help ensure that people receive medical care that is consistent and reflects their values, goals and preferences when faced with serious and chronic illness. Despite being a process that promotes respect and personal value, daily clinical practice in Medical Oncology is characterized by a lack of discussion about these issues between health professionals and patients with an oncological disease considered advanced, incurable. Objective: To comprehend the perceptions about advanced care planning of oncologists and their patients in a tertiary cancer center in Portugal. Method: We will develop an exploratory descriptive study based on the principles of qualitative research, collecting data through a semi-structured interview with a sample of oncologists and people diagnosed with advanced oncological disease. Data processing will be carried out using mixed methods, namely inductive thematic analysis for qualitative data and descriptive statistics for quantitative data. Results: The results will be presented and published in a report and based on the findings the authors aim to develop an orientation guide for health professionals reflecting the reality of people with advanced cancer in Portugal, including their desires and goals. Conclusion: With this investigation protocol, we hope to contribute to the development of advanced care planning as an essential tool in the care of cancer patients with advanced disease.
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Cuidados paliativos Planeamento avançado de cuidados Oncologia médica Relação médico-doente Palliative care Advance care planning Medical oncology Physician-patient relation
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