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Authors
Advisor(s)
Abstract(s)
A diabetes tipo 1 (DT1) tem sido reconhecida como uma das doenças mais comuns na
população pediátrica, causando um impacto significativo na vida do doente e da sua
família. O sistema parental e familiar deve corresponder às exigências da doença,
alterando, se necessário, as rotinas e padrões de interação familiar, levando a uma
consequente adaptação da família à condição. Neste sentido, reconhecendo o papel do
sistema familiar para o controlo desta doença, tem sido reforçado o interesse em
compreender a forma como estas famílias se adaptam, considerando indicadores
positivos. O presente estudo teve como objetivo explorar o contributo dos recursos do
sistema familiar e parental no contexto da diabetes pediátrica, nomeadamente a
autorregulação parental, os fatores protetores da família e a gestão da condição na
adaptação à Diabetes tipo 1, em famílias de adolescentes (12-18 anos) com esta condição.
Participaram neste estudo 131 pais/cuidadores de adolescentes com diabetes tipo 1 que
preencheram questionários para avaliar o autorregulação parental, gestão da condição,
fatores de resiliência da família, o bem-estar e o funcionamento familiar. Foram também
recolhidos dados sociodemográficos e clínicos. Os resultados apoiaram a importância dos
recursos parentais e familiares para o bem-estar e funcionamento familiar, nomeadamente
a autorregulação parental e o suporte social. No funcionamento familiar, a autorregulação
parental e a capacidade de gerir a condição revelaram-se variáveis preditoras, mostrando
que ambas contribuem para a forma como a família responde aos desafios da condição e
da parentalidade. Já no que se refere ao bem-estar, nenhuma variável revelou um efeito
significativo. As dificuldades da vida familiar e a capacidade de gerir a condição foram
ainda mediadoras parciais na relação entre os recursos parentais e familiares e o bemestar
e funcionamento familiar. Deste modo, é evidente o papel do sistema familiar e
parental para a promoção da adaptação das famílias com adolescentes com esta condição
crónica.
Type 1 diabetes (T1D) has been recognized as one of the most common chronic conditions in the pediatric population, having a significant impact on the life not only of the sick person but also in the whole family. The parental and familiar system should correspond to the requirements of the illness, that is, changing, if necessary, the routines of the family. Recognizing the role of the familiar system in controlling the chronic condition, the interest in understanding how families adapt has been enhanced, considering positive indicators. The present study aims to explore the contribution of the familiar and parental system resources, in the context of pediatric diabetes. Namely, the parental self-regulation ,the family protective factors and management condition in the adaptability to type 1 diabetes, in families with adolescents with this condition. 131 teens with type 1 diabetes parents/caregivers participated in this study by completing questionnaires to measure parental self-regulation, family resilience factors, management condition, as well as the well-being and the function of the family. Sociodemographic and clinical data have also been gathered. The results verified the importance of the familiar and the parental resources, in the family's well-being and functioning. The parental selfregulation and the ability to manage the condition have especially shown to be predictors, both showing contribute to the way family responds to the challenges. Regarding wellbeing, no variable has shown a significant effect. The difficulties of the familiar life and the ability to managing the condition were partial mediators in the relationship between parental and family resources, and family well-being and functioning. Therefore, it is clear the importance of the role of family and the parental system in the promotion of families' adaptability with adolescents with this chronic condition.
Type 1 diabetes (T1D) has been recognized as one of the most common chronic conditions in the pediatric population, having a significant impact on the life not only of the sick person but also in the whole family. The parental and familiar system should correspond to the requirements of the illness, that is, changing, if necessary, the routines of the family. Recognizing the role of the familiar system in controlling the chronic condition, the interest in understanding how families adapt has been enhanced, considering positive indicators. The present study aims to explore the contribution of the familiar and parental system resources, in the context of pediatric diabetes. Namely, the parental self-regulation ,the family protective factors and management condition in the adaptability to type 1 diabetes, in families with adolescents with this condition. 131 teens with type 1 diabetes parents/caregivers participated in this study by completing questionnaires to measure parental self-regulation, family resilience factors, management condition, as well as the well-being and the function of the family. Sociodemographic and clinical data have also been gathered. The results verified the importance of the familiar and the parental resources, in the family's well-being and functioning. The parental selfregulation and the ability to manage the condition have especially shown to be predictors, both showing contribute to the way family responds to the challenges. Regarding wellbeing, no variable has shown a significant effect. The difficulties of the familiar life and the ability to managing the condition were partial mediators in the relationship between parental and family resources, and family well-being and functioning. Therefore, it is clear the importance of the role of family and the parental system in the promotion of families' adaptability with adolescents with this chronic condition.
Description
Keywords
Adaptação da família Diabetes tipo 1 Autorregulação parental Gestão da condição Fatores protetores da família Bem-estar familiar Funcionamento familiar Family adaptation Type 1 diabetes Parental self-regulation Management condition Family protective factors Family well-being Family functioning