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Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care

2024-05-01Journal article Open access
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dc.contributor.authorNakanishi, Miharu
dc.contributor.authorPereira, Sandra Martins
dc.contributor.authorVan den Block, Lieve
dc.contributor.authorParker, Deborah
dc.contributor.authorHarrison-Dening, Karen
dc.contributor.authorDi Giulio, Paola
dc.contributor.authorin der Schmitten, Jürgen
dc.contributor.authorLarkin, Philip J
dc.contributor.authorMimica, Ninoslav
dc.contributor.authorSudore, Rebecca L
dc.contributor.authorHolmerová, Iva
dc.contributor.authorKorfage, Ida J
dc.contributor.authorSteen, Jenny T. van der
dc.date.accessioned2024-04-11T10:39:05Z
dc.date.available2024-04-11T10:39:05Z
dc.date.issued2024-05-01
dc.description.abstractAdvance care planning (ACP) is growing in importance in the global agenda for dementia care. The European Association for Palliative Care Taskforce (EAPC) on ACP in Dementia aimed to provide recommendations for policy initiatives and future research. We conducted a four-round Delphi study with a 33-country panel of 107 experts between September 2021 and June 2022 and approval by the EAPC Board. Consensus was achieved on 11 recommendations concerning advance directives’ regulation, equity of access, and dementia inclusive approaches and conversations to express patients’ values. Identified research gaps included the need for an evidence-based dementia-specific practice model that optimises engagement and communication with people with fluctuating and impaired capacity and their families to support their decision making, while also empowering people to adjust their decisions should their goals or preferences change over time. Policy gaps included a lack of health services frameworks for a dementia-inclusive practice. The results highlight the need for evidence and policy development that support inclusive ACP practice models.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.1016/S2666-7568(24)00043-6pt_PT
dc.identifier.eid85189950061
dc.identifier.issn2666-7568
dc.identifier.pmcPMC11262782
dc.identifier.pmid38608695
dc.identifier.urihttp://hdl.handle.net/10400.14/44532
dc.identifier.wos001236744700001
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAdvance care planningpt_PT
dc.subjectDementiapt_PT
dc.subjectPolicymakingpt_PT
dc.subjectResearchpt_PT
dc.subjectRecommendationspt_PT
dc.subjectDelphi studypt_PT
dc.titleFuture policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Carept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPagee378pt_PT
oaire.citation.issue5
oaire.citation.startPagee370pt_PT
oaire.citation.titleThe Lancet Healthy Longevitypt_PT
oaire.citation.volume5
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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