| Nome: | Descrição: | Tamanho: | Formato: | |
|---|---|---|---|---|
| 6.65 MB | Adobe PDF |
Autores
Orientador(es)
Resumo(s)
Introdução: As necessidades parentais emergem frequentemente da sobrecarga vivida no quotidiano, reforçando a importância de compreender e apoiar adequadamente pais/cuidadores de crianças com Perturbação de Hiperatividade e Défice de Atenção (PHDA). Este estudo teve como objetivo identificar e caracterizar as necessidades percebidas por pais e cuidadores. Metodologia: Participaram pais/cuidadores de crianças com PHDA (6–11 anos) (N = 26), acompanhadas num Centro de Desenvolvimento da Criança. O protocolo de avaliação integrou três instrumentos: questionário sociodemográfico; questionário desenvolvido para este estudo, sobre necessidades, conhecimentos, preocupações e impactos parentais; e as escalas BRIEF-2 e Conners, aplicados presencialmente. Resultados: A amostra foi composta maioritariamente por mães e crianças do sexo masculino com diagnóstico de PHDA. Todas as crianças estavam medicadas com Metilfenidato, sendo a apresentação combinada a mais prevalente. A comorbilidade mais reportada foi a Perturbação Específica da Aprendizagem. Os pais/cuidadores referiram conhecimentos moderados sobre sintomas, tratamentos farmacológicos, efeitos secundários e intervenções psicológicas. Verificaram-se discrepâncias entre o acesso e a valorização de recursos educativos e de saúde, destacando-se o apoio farmacológico como o mais acessível. Observou-se impacto moderado na vida dos pais/cuidadores, sobretudo na saúde física e mental, com associação significativa entre dificuldades emocionais das crianças e maior impacto negativo nos pais/cuidadores. Verificou-se ainda que maior conhecimento sobre os sintomas da PHDA se associou a maior impacto percecionado. Não se registaram diferenças relevantes em função das apresentações clínicas da PHDA, mas a gravidade (nível 4) associou-se a maior sobrecarga. Conclusão: Os resultados sublinham a necessidade de estratégias de apoio específicas para pais/cuidadores, com ênfase no acompanhamento psicológico, grupos de suporte e informação qualificada. Recomenda-se privilegiar o apoio profissional em detrimento de fontes informais, potenciando benefícios para pais/cuidadores e crianças. As principais limitações prendem-se com o recrutamento num único centro, a natureza transversal e o recurso a autorrelato.
Introduction: Parental needs often emerge from the burden experienced in daily life, highlighting the importance of adequately understanding and supporting parents/caregivers of children with Attention-Deficit/Hyperactivity Disorder (ADHD). This study aimed to identify and characterize the perceived needs of parents and caregivers. Methodology: Parents/caregivers of children with ADHD aged 6–11 years (N = 26), followed at a Child Development Center, participated in the study. The assessment protocol included three instruments: a sociodemographic questionnaire; a questionnaire developed for this study assessing parental needs, knowledge, concerns, and impacts; and the BRIEF-2 and Conners scales, administered in person. Results: The sample consisted predominantly of mothers and male children diagnosed with ADHD. All children were treated with methylphenidate, with the combined presentation being the most prevalent. The most frequently reported comorbidity was Specific Learning Disorder. Parents/caregivers reported moderate knowledge regarding symptoms, pharmacological treatments, side effects, and psychological interventions. Discrepancies were observed between access to and perceived value of educational and health resources, with pharmacological support identified as the most accessible. A moderate impact on parents’/caregivers’ lives was observed, particularly on physical and mental health, with a significant association between children’s emotional difficulties and greater negative impact on parents/caregivers. Greater knowledge about ADHD symptoms was also associated with higher perceived impact. No relevant differences were found according to ADHD presentations; however, greater severity (level 4) was associated with higher caregiver burden. Conclusion: The findings highlight the need for targeted support strategies for parents/caregivers, particularly psychological follow-up, support groups, and access to qualified information. Prioritizing professional support over informal sources is recommended, given its potential benefits for both parents/caregivers and children. The main limitations include recruitment from a single center, the cross-sectional design, and the use of self-report measures.
Introduction: Parental needs often emerge from the burden experienced in daily life, highlighting the importance of adequately understanding and supporting parents/caregivers of children with Attention-Deficit/Hyperactivity Disorder (ADHD). This study aimed to identify and characterize the perceived needs of parents and caregivers. Methodology: Parents/caregivers of children with ADHD aged 6–11 years (N = 26), followed at a Child Development Center, participated in the study. The assessment protocol included three instruments: a sociodemographic questionnaire; a questionnaire developed for this study assessing parental needs, knowledge, concerns, and impacts; and the BRIEF-2 and Conners scales, administered in person. Results: The sample consisted predominantly of mothers and male children diagnosed with ADHD. All children were treated with methylphenidate, with the combined presentation being the most prevalent. The most frequently reported comorbidity was Specific Learning Disorder. Parents/caregivers reported moderate knowledge regarding symptoms, pharmacological treatments, side effects, and psychological interventions. Discrepancies were observed between access to and perceived value of educational and health resources, with pharmacological support identified as the most accessible. A moderate impact on parents’/caregivers’ lives was observed, particularly on physical and mental health, with a significant association between children’s emotional difficulties and greater negative impact on parents/caregivers. Greater knowledge about ADHD symptoms was also associated with higher perceived impact. No relevant differences were found according to ADHD presentations; however, greater severity (level 4) was associated with higher caregiver burden. Conclusion: The findings highlight the need for targeted support strategies for parents/caregivers, particularly psychological follow-up, support groups, and access to qualified information. Prioritizing professional support over informal sources is recommended, given its potential benefits for both parents/caregivers and children. The main limitations include recruitment from a single center, the cross-sectional design, and the use of self-report measures.
Descrição
Palavras-chave
Crianças Necessidades parentais Perturbação de hiperatividade e défice de atenção Saúde mental Children Parental needs Attention deficit hyperactivity disorder Mental health
Contexto Educativo
Citação
Editora
Licença CC
Sem licença CC