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Advisor(s)
Abstract(s)
A preservação da dignidade como objetivo no Paliar, leva-nos muito para além do controlo de sintomas, tocamos nos aspetos físicos, psicológicos, sociais, espirituais e existenciais do doente, enquanto doente terminal. Estes aspetos quando abordados de forma sistemática ao longo do processo permite escolhas informadas, e resoluções de fim de vida. O objetivo deste projecto é descrever quais os fatores fundamentais considerados pelos doentes internados numa Unidade de Cuidados Paliativos em Portugal, na promoção da dignidade enquanto doente terminal. Como metodologia, este será um estudo qualitativo transversal observacional. A população-alvo serão doentes, adultos em regime de internamento numa Unidade de Cuidados Paliativos, sem alterações cognitivas, em pleno uso das suas capacidades, exercício da sua autonomia e capazes de dar o seu consentimento livre, informado e esclarecido. Serão colhidos dados através da aplicação do Inventário da Dignidade de Chochinov e uma entrevista semi-estruturada. Os dados serão analisados qualitativamente, segundo Bardain. Prevê-se como limitações/riscos deste estudo o agravamento da vulnerabilidade do doente, a labilidade emocional e sofrimento pela tomada de consciência dos elementos apresentados como fundamentais para a sua dignidade. A Investigações que envolvem o estudo da pessoa em condição de fragilidade, pela sua doença, ainda que inadvertidamente, podem eventualmente significar um sentimento de invasão do espaço da pessoa Humana. A confidencialidade, o direito ao anonimato, o respeito pela vida privada poderão ser aspetos incómodos para os participantes. Como perspetivas finais temos, a contribuição para o desenvolvimento da enfermagem, permitindo uma prática baseada na realização de valores para a pessoa que se encontra numa fase Paliativa e assente na promoção do melhor bem-estar possível, qualidade de vida e respeito pela vontade expressa pelo doente. No futuro, é objetivo da Investigadora a aplicação deste mesmo estudo ao nível de todas as Unidades de Cuidados Paliativos, em Portugal.
The preservation of dignity as an objective in Palliative Care takes us far beyond symptom control, we touch on the physical, psychological, social, spiritual and existential aspects of the patient, as a terminal patient. The aspects, when addressed systematically throughout the process, allow for informed choices and end-of-liferesolutions. The objective of this project is to describe the fundamental factors considered by patients admitted to a Palliative Care Unit in Portugal, in promoting dignity as a terminal patient. As a methodology, this will be a qualitative observational cross-sectional study. The target population will be patients, adults admitted to a Palliative Care Unit, without cognitive changes, in full use of their abilities, exercising their autonomy and capable of giving their free, informed and informed consent. Data will be collected through the application of the Chochinov Dignity Inventory, semi-structured interviews and it will be analyzed qualitatively according to Bardain. The limitations/risks of this study are expected to be the worsening of the patient´s vulnerability,emotional lability and suffering due to the awareness of the elements presented as fundamental to their dignity. Investigations that involve the study of people in a fragile condition, due to their illness, even if inadvertently, can eventually mean a feeling of invasion of the Human person´s space. Confidentiality, the right to anonymity, respect for private life can be uncomfortable aspects for participants. As final perspectives we have the contribution to the development of nursing, allowing a practice based on the realizations of values of the person who is in a Palliative phase and based on the promotion of the best possible well-being, quality of life and respect for the wishes expressed by the patient. In the future, it is an objective of the main researcher to apply this same study to all Palliative Care Units in Portugal.
The preservation of dignity as an objective in Palliative Care takes us far beyond symptom control, we touch on the physical, psychological, social, spiritual and existential aspects of the patient, as a terminal patient. The aspects, when addressed systematically throughout the process, allow for informed choices and end-of-liferesolutions. The objective of this project is to describe the fundamental factors considered by patients admitted to a Palliative Care Unit in Portugal, in promoting dignity as a terminal patient. As a methodology, this will be a qualitative observational cross-sectional study. The target population will be patients, adults admitted to a Palliative Care Unit, without cognitive changes, in full use of their abilities, exercising their autonomy and capable of giving their free, informed and informed consent. Data will be collected through the application of the Chochinov Dignity Inventory, semi-structured interviews and it will be analyzed qualitatively according to Bardain. The limitations/risks of this study are expected to be the worsening of the patient´s vulnerability,emotional lability and suffering due to the awareness of the elements presented as fundamental to their dignity. Investigations that involve the study of people in a fragile condition, due to their illness, even if inadvertently, can eventually mean a feeling of invasion of the Human person´s space. Confidentiality, the right to anonymity, respect for private life can be uncomfortable aspects for participants. As final perspectives we have the contribution to the development of nursing, allowing a practice based on the realizations of values of the person who is in a Palliative phase and based on the promotion of the best possible well-being, quality of life and respect for the wishes expressed by the patient. In the future, it is an objective of the main researcher to apply this same study to all Palliative Care Units in Portugal.
Description
Keywords
Dignidade Cuidados paliativos Chochinov Autonomia da pessoa Dignity Palliative care Autonomy of the person