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O envolvimento do irmão saudável na prestação de cuidados ao irmão com doença crónica : intervenção do enfermeiro especialista
| Name: | Description: | Size: | Format: | |
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| 3.34 MB | Adobe PDF |
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Abstract(s)
Com o decorrer do tempo, a família é confrontada com várias mudanças (o nascimento de um filho, morte de um membro da família, anúncio de uma doença…), havendo necessidade de acompanhar a família durante essas mudanças difíceis e ajudar a ultrapassar as diferentes transições. A criança e a sua família têm a necessidade de cuidados de enfermagem de acordo com a sua condição de saúde, desenvolvimento psicossocial e com a cultura. O objetivo primordial da Enfermagem de Saúde Infantil e Pediatria é a melhoria da qualidade dos cuidados de saúde das crianças e das famílias, ajudando-os a ultrapassar com sucesso as diversas transições por que passam. No âmbito do Curso de Mestrado em Enfermagem, com Especialização em Enfermagem de Saúde Infantil e Pediátrica da Universidade Católica Portuguesa, surge este relatório que visa analisar critico-reflexivamente o desenvolvimento de competências decorrente do processo formativo. O relatório é centrado nas transições do irmão saudável, tendo por base a revisão da literatura de tipo scoping e os trabalhos elaborados nos diferentes contextos de estágio. Ao anunciar uma doença crónica da criança, o núcleo familiar vai sofrer várias alterações e os irmãos saudáveis terão de encontrar estratégias para enfrentarem essas mudanças e serem integrados nas novas rotinas. A relação entre irmãos é essencial no desenvolvimento das crianças. A doença do irmão é entendida como uma experiência de sofrimento e angústia. Para esse efeito, os irmãos vão precisar do apoio dos profissionais de saúde e dos pais, com o intuito de serem informados da situação do irmão doente, de modo a participarem nas decisões, e sentir que são incluídos nas novas rotinas e prestação dos cuidados ao irmão. O Enfermeiro Especialista em Saúde Infantil e Pediátrica tem um papel fundamental no desenvolvimento de competências relacionadas com saúde, neste caso, ajudando os irmãos saudáveis a adaptarem-se à doença crónica do irmão, criando novos hábitos de modo a minimizar o impacto no seu desenvolvimento. Cada contexto de estágio permitiu-me desenvolver competências especializadas no cuidar da criança e jovem/família, mas também tentar de perceber o acompanhamento das transições vividas pelos irmãos.
Throughout time, families face a variety of changes like the birth of a child, the death of a relative, the news of an illness, and more. This is why Child and Pediatric Health Nursing is here to support families during these tough times and help them overcome the different transitions of a patient. Through the Master’s Degree in Nursing, specializing in Child and Pediatric Health Nursing at the Catholic University of Portugal arises this report aiming to describe my formative journey. To this end will be described the objectives, activities developed throughout my various internships, and reflective analysis. My formative journey was upheld by Meleis’s transition theory as a theoretical approach to base my different objectives. This report is focused on the healthy sibling’s transition, based on the revision of the literature and projects drawn up in the different contexts of the internship. In announcing the illness, the family nucleus is going to suffer a variety of changes, and the healthy sibling will have to find strategies to face these adjustments. Living with a sibling having a chronic condition is considered a difficult stage for the other children, leaving them preoccupied about their sick sibling’s health. The relationship between siblings is essential in children’s development. The sibling’s illness is perceived as an “experience of suffering and distress”. To overcome this phase, healthy siblings need to find strategies to adapt the new rhythm of life the sibling illness requires. To this effect, siblings will need support from health professionals and from the parents, with the aim to be informed of the sick sibling’s situation, to then be able to participate in decisions and feel involved in the new routines and care provided to the ill brother or sister. Specialist Nurses in Infant and Pediatric Health have a fundamental role in the development of health-related skills, in this case, helping healthy siblings adapt to their brother or sister’s chronic illness, creating new habits to minimize his/her own development. Each internship context enabled me to develop specialized skills in the care of the child, teenager, and family, but also trying to understand the accompaniment of the transitions experienced by the brothers. The formative journey proves that the different activities developed allowed me to deepen my skills as a Specialist Nurse in Infant and Pediatric Health, but also common skills of the graduate level of studies.
Throughout time, families face a variety of changes like the birth of a child, the death of a relative, the news of an illness, and more. This is why Child and Pediatric Health Nursing is here to support families during these tough times and help them overcome the different transitions of a patient. Through the Master’s Degree in Nursing, specializing in Child and Pediatric Health Nursing at the Catholic University of Portugal arises this report aiming to describe my formative journey. To this end will be described the objectives, activities developed throughout my various internships, and reflective analysis. My formative journey was upheld by Meleis’s transition theory as a theoretical approach to base my different objectives. This report is focused on the healthy sibling’s transition, based on the revision of the literature and projects drawn up in the different contexts of the internship. In announcing the illness, the family nucleus is going to suffer a variety of changes, and the healthy sibling will have to find strategies to face these adjustments. Living with a sibling having a chronic condition is considered a difficult stage for the other children, leaving them preoccupied about their sick sibling’s health. The relationship between siblings is essential in children’s development. The sibling’s illness is perceived as an “experience of suffering and distress”. To overcome this phase, healthy siblings need to find strategies to adapt the new rhythm of life the sibling illness requires. To this effect, siblings will need support from health professionals and from the parents, with the aim to be informed of the sick sibling’s situation, to then be able to participate in decisions and feel involved in the new routines and care provided to the ill brother or sister. Specialist Nurses in Infant and Pediatric Health have a fundamental role in the development of health-related skills, in this case, helping healthy siblings adapt to their brother or sister’s chronic illness, creating new habits to minimize his/her own development. Each internship context enabled me to develop specialized skills in the care of the child, teenager, and family, but also trying to understand the accompaniment of the transitions experienced by the brothers. The formative journey proves that the different activities developed allowed me to deepen my skills as a Specialist Nurse in Infant and Pediatric Health, but also common skills of the graduate level of studies.
Description
Keywords
Irmãos Doença crónica Envolvimento Enfermagem pediátrica Família Siblings Chronic condition Participation Pediatric nursing Family