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Abstract(s)
A elaboração deste relatório surge no culminar do percurso formativo do Curso de Mestrado em Enfermagem com Especialização em Saúde Infantil e Pediátrica pelo Instituto de Ciências da Saúde da Universidade Católica de Lisboa. Ao longo deste percurso escolhi como temática a adaptação da criança e família a doença crónica. Há uma crescente tendência para a doença crónica em idade pediátrica. Com o avanço tecnológico e biomédico, houve um aumento da sobrevivência das crianças com condições de saúde complexas. Isto traz implicações na vida da criança e família. Como referencial teórico no estudo desta temática utilizei o Modelo de Adaptação de Callista Roy sendo que o Modelo de Parceria de Anna Casey surgiu como apoio no cuidado as crianças e famílias na promoção da sua adaptação. Prestei cuidados e desenvolvi atividades em diferentes contextos onde há intervenção do enfermeiro especialista de saúde infantil e pediátrica, nomeadamente nos cuidados de saúde primários, no serviço de Urgência Pediátrica, Neonatologia e Pediatria. O objetivo geral e transversal a todos os contextos que definido foi desenvolver competências de enfermeiro especialista de saúde infantil e pediátrica nos diversos contextos, sendo os específicos de cada contexto direcionados para os respetivos diagnósticos de situação, tendo sempre por base a temática a trabalhar: a adaptação da criança e família a doença crónica. Dos trabalhos desenvolvidos destacam-se sessões de educação para a saúde sobre prevenção de acidentes e sobre prematuridade das quais resultaram uma sugestão de atividade a ser desenvolvida pelos enfermeiros do serviço e um guia orientador para os profissionais; uma instrução de trabalho sobre o acompanhamento da criança com diabetes, mapeamento de intervenções a ser planeadas na preparação para o regresso a casa de crianças com doença crónica /necessidades especiais de saúde do qual resultou uma norma de orientação para os enfermeiros. No decorrer deste percurso pude desenvolver competências especificas de enfermeiro especialista em saúde infantil e pediátrica, no cuidado à criança/jovem e família nas necessidades do ciclo de vidas e nas situações de maior complexidade, na maximização da sua saúde, através das atividades desenvolvidas, dos cuidados prestados, da contínua pesquisa científica que efetuei na sua fundamentação.
The preparation of this report comes at the culmination of the training course of the Master Course in Nursing with Specialization in Child and Pediatric Health by the Institute of Health Sciences of the Catholic University of Lisbon. Throughout this course I chose as the theme the adaptation of the child and family to chronic illness. There is a growing trend towards chronic illness in pediatric age. With the technological and biomedical advancement, there was an increase in the survival of children with complex health conditions. This has implications for the life of the child and family. As a theoretical reference in the study of this theme I used the Adaptation Model of Callista Roy and the Partnership Model of Anna Casey emerged as a support in the care of children and families in promoting their adaptation. I have cared for and developed activities m different contexts where there is intervention of the specialist pediatric and child health nurse, namely in primary health care, Pediatric Emergency Services, Neonatology and Pediatrics. The objective and transversal to all the contexts that was defined was to develop skills of specialist nurses in pediatric and child health in the different contexts, the specifics of each context being directed to the respective diagnoses of situation, always having as a base the theme to work: the adaptation of the child and family to chronic disease. Of the developed works, health education sessions on accident prevention and on prematurity were highlighted, which resulted in a suggestion of activity to be developed by the nurses of the service and a guideline for professionals; a work instruction on the follow-up of the child with diabetes, mapping of interventions to be planned in the preparation for the return home of children with chronic illness / special health needs which resulted in a guideline for nurses. In the course of this course, I was able to develop specific skills of a specialist nurse in children's and pediatric health, in the care of the child / young person and family in the life cycle needs and in the situations of greater complexity, in the maximization of their health, through the activities developed, the provided by the continuous scientific research that I carried out in its foundations.
The preparation of this report comes at the culmination of the training course of the Master Course in Nursing with Specialization in Child and Pediatric Health by the Institute of Health Sciences of the Catholic University of Lisbon. Throughout this course I chose as the theme the adaptation of the child and family to chronic illness. There is a growing trend towards chronic illness in pediatric age. With the technological and biomedical advancement, there was an increase in the survival of children with complex health conditions. This has implications for the life of the child and family. As a theoretical reference in the study of this theme I used the Adaptation Model of Callista Roy and the Partnership Model of Anna Casey emerged as a support in the care of children and families in promoting their adaptation. I have cared for and developed activities m different contexts where there is intervention of the specialist pediatric and child health nurse, namely in primary health care, Pediatric Emergency Services, Neonatology and Pediatrics. The objective and transversal to all the contexts that was defined was to develop skills of specialist nurses in pediatric and child health in the different contexts, the specifics of each context being directed to the respective diagnoses of situation, always having as a base the theme to work: the adaptation of the child and family to chronic disease. Of the developed works, health education sessions on accident prevention and on prematurity were highlighted, which resulted in a suggestion of activity to be developed by the nurses of the service and a guideline for professionals; a work instruction on the follow-up of the child with diabetes, mapping of interventions to be planned in the preparation for the return home of children with chronic illness / special health needs which resulted in a guideline for nurses. In the course of this course, I was able to develop specific skills of a specialist nurse in children's and pediatric health, in the care of the child / young person and family in the life cycle needs and in the situations of greater complexity, in the maximization of their health, through the activities developed, the provided by the continuous scientific research that I carried out in its foundations.
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Keywords
Enfermagem pediátrica Doença crónica Criança Família Pediatric nursing Chronic disease Child Family