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Advisor(s)
Abstract(s)
Introdução: Os serviços de cuidados paliativos pediátricos (CPP) têm-se desenvolvido em todo o mundo nos últimos anos, sendo os indicadores de qualidade (IQ) instrumentos essenciais para avaliar este desenvolvimento. Objetivos: Identificar indicadores de qualidade utilizados internacionalmente para a avaliação e acompanhamento dos cuidados prestados por serviços de CPP. Materiais e métodos: Foi realizada uma pesquisa sistemática em três bases de dados bibliográficas eletrónicas, com recorte temporal entre 2000 e 2021, dado ao estádio inicial das pesquisas relativas à qualidade em CPP. Todas as publicações relacionadas com os IQ e CPP foram avaliadas por cinco investigadores de forma independente e foram incluídas as que atenderam aos critérios de inclusão: texto completo em inglês, português, espanhol ou francês; população de referência composta por crianças, adolescentes e/ou adultos jovens com doenças limitantes ou ameaçadoras à vida ou condições crónicas complexas; em contexto de CPP ou cuidados de fim de vida; com definição clara do IQ proposto onde se pode definir ou deduzir o numerador e denominador. Todo o processo seguiu as orientações do Joanna Briggs Institute (JBI) para scoping reviews. Resultados: Foram incluídas sete publicações, todas da última década; destas apenas duas relacionavam os IQ com a avaliação dos cuidados prestados pelos serviços de CPP. Um total de 332 IQ foram identificados e categorizados segundo os oito domínios propostos pelo National Consensus Project for Quality Palliative Care, sendo que 45% estavam relacionados com aspetos da estrutura e processo do cuidar e 21% com os cuidados à criança em fase terminal. Quanto à tipologia, 51% dos IQ eram de processo, 41% de resultado e 8% de estrutura. Conclusão: Esta revisão reuniu um número significativo de IQ que poderão ser úteis como ponto de partida para a avaliação da qualidade dos cuidados prestados por serviços de CPP, servindo a profissionais de saúde, gestores, formuladores de políticas de saúde, pesquisadores e representantes da criança e família.
Introduction: Pediatric palliative care (PPC) services have developed worldwide in recent years, and quality indicators (QIs) are essential tools for assessing this development. Objectives: To identify quality indicators used internationally to evaluate and monitor the care provided by PPC services. Materials and methods: A systematic search was carried out in three electronic bibliographic databases, with a time frame between 2000 and 2021 given the early stage of research into quality in PPC. All publications related to QIs and PPC were independently assessed by five researchers and those that met the inclusion criteria were included: full text in English, Portuguese, Spanish or French; reference population made up of children, adolescents and/or young adults with life-limiting or life-threatening illnesses or complex chronic conditions; in the context of PPC or end-of-life care; with a clear definition of the proposed QI where the numerator and denominator can be defined or deduced. The whole process followed the Joanna Briggs Institute (JBI) guidelines for scoping reviews. Results: Seven publications were included, all from the last decade; of these, only two related QIs to the evaluation of care provided by PPC services. A total of 332 QIs were identified and categorized according to the eight domains proposed by the National Consensus Project for Quality Palliative Care, of which 45% were related to aspects of the structure and process of care and 21% to the care of the terminally ill child. In terms of typology, 51% of the QIs were process QIs, 41% were outcome QIs and 8% were structure QIs. Conclusion: This review brought together a significant number of QIs that could be useful as a starting point for evaluating the quality of care provided by PPC services, serving health professionals, managers, health policy makers, researchers and representatives of the child and family.
Introduction: Pediatric palliative care (PPC) services have developed worldwide in recent years, and quality indicators (QIs) are essential tools for assessing this development. Objectives: To identify quality indicators used internationally to evaluate and monitor the care provided by PPC services. Materials and methods: A systematic search was carried out in three electronic bibliographic databases, with a time frame between 2000 and 2021 given the early stage of research into quality in PPC. All publications related to QIs and PPC were independently assessed by five researchers and those that met the inclusion criteria were included: full text in English, Portuguese, Spanish or French; reference population made up of children, adolescents and/or young adults with life-limiting or life-threatening illnesses or complex chronic conditions; in the context of PPC or end-of-life care; with a clear definition of the proposed QI where the numerator and denominator can be defined or deduced. The whole process followed the Joanna Briggs Institute (JBI) guidelines for scoping reviews. Results: Seven publications were included, all from the last decade; of these, only two related QIs to the evaluation of care provided by PPC services. A total of 332 QIs were identified and categorized according to the eight domains proposed by the National Consensus Project for Quality Palliative Care, of which 45% were related to aspects of the structure and process of care and 21% to the care of the terminally ill child. In terms of typology, 51% of the QIs were process QIs, 41% were outcome QIs and 8% were structure QIs. Conclusion: This review brought together a significant number of QIs that could be useful as a starting point for evaluating the quality of care provided by PPC services, serving health professionals, managers, health policy makers, researchers and representatives of the child and family.
Description
Keywords
Cuidados paliativos Crianças Qualidade dos cuidados Indicadores de qualidade Palliative care Children Quality of health care Quality indicators