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Parenting of children with autism spectrum disorder: a grounded theory study

2021-07Journal article Open access
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dc.contributor.authorViana, Clara Roquette
dc.contributor.authorCaldeira, Sílvia
dc.contributor.authorLourenço, Margarida
dc.contributor.authorFigueiredo, Amélia Simões
dc.date.accessioned2021-08-02T08:44:41Z
dc.date.available2021-08-02T08:44:41Z
dc.date.issued2021-07
dc.description.abstractBackground: Parenting a child with an autism spectrum disorder (ASD) involves several processes and emotions during this transition. In addition to the family's natural transition when a child is born, the family of a child with ASD has to deal with the particularities of the disability, its characteristics, and its evolution. Methods: This is a qualitative grounded theory study aiming to deepen the knowledge about the process of parenting children with ASD. Data were collected using interviews and observations of nine couples and one single mother. Results: Coding and analysis led to the main theme, which is as follows: parenting of children with ASD as representative of the parents' transformation while caring for the child, also based on adaptation throughout this experience. Conclusions: Parenting is a dynamic process, grounded on the interaction of different contexts, such as family, education, health, and society, and on the co-construction of different times and episodes. These characteristics underline the complex and individual nature of parenting children with autism, which requires specific assessments and interventions by nurses when caring for these families, whether in a family nursing context, community nursing, and pediatric nursing or midwifery.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.3390/healthcare9070872pt_PT
dc.identifier.eid85111066503
dc.identifier.issn2227-9032
dc.identifier.pmcPMC8306821
dc.identifier.pmid34356250
dc.identifier.urihttp://hdl.handle.net/10400.14/34346
dc.identifier.wos000676157700001
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAutism spectrum disorderpt_PT
dc.subjectQualitative researchpt_PT
dc.subjectLived experiencespt_PT
dc.subjectNursing researchpt_PT
dc.titleParenting of children with autism spectrum disorder: a grounded theory studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue7pt_PT
oaire.citation.titleHealthcarept_PT
oaire.citation.volume9pt_PT
person.familyNameRoquette Viana
person.familyNameCaldeira
person.familyNameLourenço
person.familyNameFigueiredo
person.givenNameMaria Clara
person.givenNameSílvia
person.givenNameMargarida
person.givenNameAmélia
person.identifier1709926
person.identifierK-8035-2013
person.identifierAAE-6506-2020
person.identifier.ciencia-id4114-2C8A-724B
person.identifier.ciencia-idAC1F-FB3D-C6F5
person.identifier.ciencia-id8A10-1020-D43E
person.identifier.ciencia-id9612-C938-A010
person.identifier.orcid0000-0002-9629-4618
person.identifier.orcid0000-0002-9804-2297
person.identifier.orcid0000-0002-3610-5192
person.identifier.orcid0000-0003-2908-4052
person.identifier.ridK-8035-2013
person.identifier.scopus-author-id57226282669
person.identifier.scopus-author-id55487193800
person.identifier.scopus-author-id57195319025
person.identifier.scopus-author-id57191984899
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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relation.isAuthorOfPublicationd412bc85-8c2e-4ea5-9b66-e89c56c6d57c
relation.isAuthorOfPublicationbe5cc94c-64a5-46f4-82e1-71c04a458c83
relation.isAuthorOfPublication40ceeb3a-118d-4d63-a2e6-c746148361d2
relation.isAuthorOfPublication.latestForDiscovery5219b329-b46b-446b-b207-d28f10792aa6

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