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Advisor(s)
Abstract(s)
Introdução: Em cuidados paliativos, uma temática que é habitualmente desvalorizada é a da sexualidade, neste sentido, este estudo tem como objetivo principal compreender a vivência da sexualidade dos doentes em cuidados paliativos. Metodologia: Foi utilizada uma metodologia qualitativa com abordagem fenomenológica, tendo sido realizadas entrevistas semiestruturadas a treze doentes acompanhados por uma equipa intra-hospitalar de suporte em cuidados paliativos. Posteriormente, por análise de conteúdo, emergiram categorias e subcategorias, com as respetivas unidades de significação. Resultados: A análise revelou como a sexualidade se mantém uma parte integral da vida dos doentes, apesar da doença. As categorias que emergiram foram: crenças e significado da sexualidade (com quatro subcategorias); impacto causado pela doença na vivência da sexualidade (com quatro subcategorias); vivência atual da sexualidade (com quatro subcategorias); abordagem dos profissionais de saúde relativamente à sexualidade (com três subcategorias) e perspetivas sobre a vida, a identidade, a doença e a sexualidade. Os participantes expressaram várias crenças e significados associados à sexualidade, valorizando o espaço íntimo da mesma. Ao longo da trajetória da doença, referiram a necessidade de adaptar várias esferas da sua vida, incluindo a da sexualidade. Para além disso, evidenciaram como a abordagem sobre esta temática por parte dos profissionais de saúde foi escassa, mesmo verificando-se que a sua intervenção não teria de depender de um conhecimento especializado. Conclusões: Conclui-se que a abordagem integrada e personalizada, para garantir que temas como a sexualidade são abordados, é fundamental. Ao reconhecer e respeitar a multiplicidade das experiências e perspetivas dos doentes, os profissionais de saúde criam um espaço para explorar a complexidade da sexualidade. Desta forma, valoriza-se a pessoa no seu todo e, concomitantemente, contribui-se para a melhoria da prática assistencial, incluindo no contexto dos cuidados paliativos.
Introduction: In palliative care, a topic that is usually undervalued is sexuality. In this sense, this study's main objective is to understand the experience of sexuality of patients in palliative care. Methodology: A qualitative methodology with a phenomenological approach was used, with semi-structured interviews being carried out with thirteen patients accompanied by a palliative care support team. Subsequently, through content analysis, categories and subcategories emerged with their respective units of meaning. Results: The analysis revealed how sexuality remains an integral part of patients' lives despite the disease. The categories that emerged were: beliefs and meaning of sexuality (with four subcategories); impact caused by the disease on the experience of sexuality (with four subcategories); current experience of sexuality (with four subcategories); health care professionals' approach to sexuality (with three subcategories) and perspectives on life, identity, illness and sexuality. Participants expressed various beliefs and meanings associated with sexuality, valuing its intimate space. Throughout the course of the disease, they mentioned the need to adapt to various areas of their lives, including sexuality. Furthermore, they highlighted how little approach to this topic was taken by healthcare professionals, even though it was verified that their intervention would not have to depend on specialized knowledge. Conclusions: It is concluded that an integrated and personalized approach to ensure that topics such as sexuality are addressed is fundamental. By recognizing and respecting the multiplicity of patients' experiences and perspectives, healthcare professionals create a space to explore the complexity of sexuality. In this way, the person as a whole is valued, and, at the same time, it contributes to the improvement of care in the context of palliative care.
Introduction: In palliative care, a topic that is usually undervalued is sexuality. In this sense, this study's main objective is to understand the experience of sexuality of patients in palliative care. Methodology: A qualitative methodology with a phenomenological approach was used, with semi-structured interviews being carried out with thirteen patients accompanied by a palliative care support team. Subsequently, through content analysis, categories and subcategories emerged with their respective units of meaning. Results: The analysis revealed how sexuality remains an integral part of patients' lives despite the disease. The categories that emerged were: beliefs and meaning of sexuality (with four subcategories); impact caused by the disease on the experience of sexuality (with four subcategories); current experience of sexuality (with four subcategories); health care professionals' approach to sexuality (with three subcategories) and perspectives on life, identity, illness and sexuality. Participants expressed various beliefs and meanings associated with sexuality, valuing its intimate space. Throughout the course of the disease, they mentioned the need to adapt to various areas of their lives, including sexuality. Furthermore, they highlighted how little approach to this topic was taken by healthcare professionals, even though it was verified that their intervention would not have to depend on specialized knowledge. Conclusions: It is concluded that an integrated and personalized approach to ensure that topics such as sexuality are addressed is fundamental. By recognizing and respecting the multiplicity of patients' experiences and perspectives, healthcare professionals create a space to explore the complexity of sexuality. In this way, the person as a whole is valued, and, at the same time, it contributes to the improvement of care in the context of palliative care.
Description
Keywords
Sexualidade Cuidados paliativos Fenomenologia Sexuality Palliative care Phenomenology