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Embracing time: the (dis)comfort of life after allogeneic stem cell transplants

dc.contributor.authorBacalhau, Lúcia
dc.contributor.authorPontifice Sousa, Patrícia
dc.date.accessioned2025-04-09T10:20:43Z
dc.date.available2025-04-09T10:20:43Z
dc.date.issued2025-02-06
dc.description.abstractAllogeneic Stem Cells Transplantation (ASCT) and, consequently, the chronicity associated with this life event has a growing prevalence and a significant impact on the life and daily life of each person who experiences it. The growing number of ASCT survivors highlights the need to reflect on the unique challenges they face throughout their recovery. To understand the meaning of the encounter with time in the lived experience of comfort for survivors of ASCT. Qualitative approach using van Manen's phenomenology of practice. We uncovered the phenomenon through phenomenological interviews, which integrated narratives and illustrative episodes that reflected the lived experiences of 20 survivors. Descriptions of lived experiences were collected from participants between July 2020 and May 2021. The following themes emerged from the ASCT survivor's lived experience of comfort related to time: giving time to live, time for what is important, time for the future, and living the time of day. This study reveals the importance of time for the survivor, the anguish of the time of discomfort, and creativity in the search to live the time of comfort provided by the ASCT.eng
dc.identifier.doi10.21926/obm.transplant.2501233
dc.identifier.eid105000924300
dc.identifier.issn2577-5820
dc.identifier.urihttp://hdl.handle.net/10400.14/52948
dc.language.isoeng
dc.peerreviewedyes
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subjectComfort
dc.subjectPhenomenology of practice
dc.subjectStem cells transplantation/bone marrow transplant
dc.subjectSurvivor
dc.subjectTime
dc.titleEmbracing time: the (dis)comfort of life after allogeneic stem cell transplantseng
dc.typeresearch article
dspace.entity.typePublication
oaire.citation.issue1
oaire.citation.titleOBM Transplantation
oaire.citation.volume9
oaire.versionhttp://purl.org/coar/version/c_970fb48d4fbd8a85
person.familyNameBacalhau
person.familyNamePontifice Sousa
person.givenNameLúcia
person.givenNamePatrícia
person.identifier3870540
person.identifier.ciencia-id3E13-6FDE-BA17
person.identifier.ciencia-idA21D-DF15-2BC8
person.identifier.orcid0000-0002-3736-1200
person.identifier.orcid0000-0003-0749-9011
person.identifier.scopus-author-id56469599600
relation.isAuthorOfPublicationd22afe4e-0ee8-433c-acce-cd197aeafa0f
relation.isAuthorOfPublicationa0e9e48a-d4aa-4f4e-9970-45656e478c34
relation.isAuthorOfPublication.latestForDiscoveryd22afe4e-0ee8-433c-acce-cd197aeafa0f

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