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Advisor(s)
Abstract(s)
Introdução: O termo Demência traduz um conjunto de sintomas de um grupo alargado de doenças que causam declínio cognitivo e interferem na função ocupacional, doméstica e social da pessoa. É uma doença irreversível cuja taxa de prevalência tem vindo cada vez mais a aumentar e causa grande impacto social e económico para as famílias/cuidadores e comunidade. Sendo a demência uma doença progressiva e incurável, os cuidados paliativos são uma resposta possível com o intuito de promover bem-estar, qualidade de vida ao doente/família, priorizando cuidados e respeitando a dignidade humana. Objetivo: Refletir sobre os fatores que condicionam a acessibilidade dos doentes com demência aos cuidados paliativos. Materiais e métodos: Estudo qualitativo elaborado no âmbito de um projeto de investigação, com recurso a análise temática. Resultados: Foram entrevistadas duas classes médicas, neurologistas e paliativistas com o intuito de identificar os fatores que condicionam a acessibilidade do doente com demência aos cuidados paliativos. Na perspetiva de ambos, nada existe que promova a acessibilidade, apenas foram encontrados fatores que a condicionam/limitam. De entre os quais foram identificados, a sociedade, políticas/sistema de saúde, profissionais de saúde e doente/família. Conclusão: Os cuidados paliativos traduzem uma resposta adequada ao doente com demência, priorizando a qualidade de vida e identificando as necessidades deste tipo de doentes/famílias. Contudo o défice na formação quer dos profissionais de saúde quer da população em geral relativamente ao tema em questão, influencia negativamente a ligação entre demência e cuidados paliativos. É importante priorizar a formação/sensibilização destes e investir numa abordagem multidisciplinar, melhorando os recursos e as políticas de saúde para o doente/família com demência.
Introduction: The term Dementia translates a set of symptoms from a wide group of diseases that cause cognitive decline and interfere with a person’s occupational, domestic and social function. It is an irreversible disease whose prevalence rate has been increasing and causes great social and economic impact on families/caregivers and the community. As dementia is a progressive and incurable disease, palliative care is a possible answer with the aim of promoting well-being and quality of life for the patient/family, prioritizing care and respecting human dignity. Objective: Reflect on the factors that affect the accessibility of patients with dementia to palliative care. Materials and methods: Qualitative study prepared as part of a research project, using thematic analysis. Results: Two medical classes were interviewed, neurologists and palliative care professionals with the aim of identifying the factors that affect the accessibility of patients with dementia to palliative care. From the perspective of both, there is nothing that promotes accessibility, only factors that condition/limit it were found. The factors identified were, society, health policies/system, health professionals and patient/family. Conclusion: Palliative care is an appropriate response to patients with dementia, prioritizing quality of life and identifying the needs of this type of patient/family. However, the lack of training from both health professionals and the general population regarding the topic in question negatively influences both dementia and palliative care. It is important to prioritize their training/awareness and invest in a multidisciplinary approach, improving resources and health policies for the patient/family with dementia.
Introduction: The term Dementia translates a set of symptoms from a wide group of diseases that cause cognitive decline and interfere with a person’s occupational, domestic and social function. It is an irreversible disease whose prevalence rate has been increasing and causes great social and economic impact on families/caregivers and the community. As dementia is a progressive and incurable disease, palliative care is a possible answer with the aim of promoting well-being and quality of life for the patient/family, prioritizing care and respecting human dignity. Objective: Reflect on the factors that affect the accessibility of patients with dementia to palliative care. Materials and methods: Qualitative study prepared as part of a research project, using thematic analysis. Results: Two medical classes were interviewed, neurologists and palliative care professionals with the aim of identifying the factors that affect the accessibility of patients with dementia to palliative care. From the perspective of both, there is nothing that promotes accessibility, only factors that condition/limit it were found. The factors identified were, society, health policies/system, health professionals and patient/family. Conclusion: Palliative care is an appropriate response to patients with dementia, prioritizing quality of life and identifying the needs of this type of patient/family. However, the lack of training from both health professionals and the general population regarding the topic in question negatively influences both dementia and palliative care. It is important to prioritize their training/awareness and invest in a multidisciplinary approach, improving resources and health policies for the patient/family with dementia.
Description
Keywords
Demência Cuidados paliativos Acessibilidade Dementia Palliative care Accessibility