Publication
Consensus definition of advance care planning in dementia: a 33-country Delphi study
| dc.contributor.author | European Association for Palliative Care | |
| dc.contributor.author | Steen, Jenny T. van der | |
| dc.contributor.author | Nakanishi, Miharu | |
| dc.contributor.author | Van den Block, Lieve | |
| dc.contributor.author | Di Giulio, Paola | |
| dc.contributor.author | Gonella, Silvia | |
| dc.contributor.author | in der Schmitten, Jürgen | |
| dc.contributor.author | Sudore, Rebecca | |
| dc.contributor.author | Harrison Dening, Karen | |
| dc.contributor.author | Parker, Deborah | |
| dc.contributor.author | Mimica, Ninoslav | |
| dc.contributor.author | Holmerova, Iva | |
| dc.contributor.author | Larkin, Philip | |
| dc.contributor.author | Pereira, Sandra Martins | |
| dc.contributor.author | Rietjens, Judith A.C. | |
| dc.contributor.author | Korfage, Ida | |
| dc.date.accessioned | 2024-02-28T17:28:16Z | |
| dc.date.available | 2024-02-28T17:28:16Z | |
| dc.date.issued | 2024-02-01 | |
| dc.description.abstract | INTRODUCTION: Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention. METHODS: Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online surveys by 107 experts from 33 countries, September 2021 to June 2022; (C) approval by the EAPC board. RESULTS: ACP in dementia was defined as a communication process adapted to the person's capacity, which includes, and is continued with, family if available. We identified pragmatic boundaries regarding participation and time (i.e., current or end-of-life care). Three interrelated issues that deserve particular attention were capacity, family, and engagement and communication. DISCUSSION: A communication and relationship-centered definitional framework of ACP in dementia evolved through international consensus supporting inclusiveness of persons with dementia and their family. | pt_PT |
| dc.description.version | info:eu-repo/semantics/publishedVersion | pt_PT |
| dc.identifier.doi | 10.1002/alz.13526 | pt_PT |
| dc.identifier.eid | 85177234602 | |
| dc.identifier.eid | PMC10916978 | |
| dc.identifier.issn | 1552-5260 | |
| dc.identifier.pmid | 37985444 | |
| dc.identifier.uri | http://hdl.handle.net/10400.14/44103 | |
| dc.identifier.wos | 001104569400001 | |
| dc.language.iso | eng | pt_PT |
| dc.peerreviewed | yes | pt_PT |
| dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | pt_PT |
| dc.subject | Advance care planning | pt_PT |
| dc.subject | Conceptualization | pt_PT |
| dc.subject | Decision-making | pt_PT |
| dc.subject | Dementia | pt_PT |
| dc.subject | Palliative care | pt_PT |
| dc.title | Consensus definition of advance care planning in dementia: a 33-country Delphi study | pt_PT |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.citation.endPage | 1320 | |
| oaire.citation.issue | 2 | |
| oaire.citation.startPage | 1309 | |
| oaire.citation.title | Alzheimer's and Dementia | pt_PT |
| oaire.citation.volume | 20 | |
| rcaap.rights | openAccess | pt_PT |
| rcaap.type | article | pt_PT |