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The Portuguese versions of the This Is ME Questionnaire and the Patient Dignity Question: tools for understanding and supporting personhood in clinical care

2018Journal article Open access
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dc.contributor.authorJulião, Miguel
dc.contributor.authorCourelas, Carla
dc.contributor.authorCosta, Manuel João
dc.contributor.authorSantos, Nadine Correia
dc.contributor.authorFareleira, Filipa
dc.contributor.authorAntunes, Bárbara
dc.contributor.authorMagalhães, Susana
dc.contributor.authorSousa, Paulo Faria de
dc.contributor.authorHarvey, Max Chochinov
dc.date.accessioned2018-12-07T18:00:18Z
dc.date.available2018-12-07T18:00:18Z
dc.date.issued2018
dc.description.abstractBackground: Modern medicine can be impersonal and routinized, paying insufficient attention to issues of personhood. The Patient Dignity Question (PDQ) and This Is ME (TIME) Questionnaire are clinical tools developed with the aim of probing for personhood, reinforcing dignity and promoting health care attitudes based on looking at people for who they are and not defining them solely based on their medical condition. This study aimed to translate and validate the TIME Questionnaire and the PDQ into European Portuguese, coined as Questionário Este Sou EU (ESEU) and Pergunta da Dignidade (PD), respectively. Methods: A three-stage research design, namely: a forward and back translation process (which included an expert committee panel), collected data on a sample of 43 non-institutionalized active elderly for the validation stage and a final expert panel consultation. Inclusion criteria: being 50 years old or older; ability to provide written informed consent; ability to read, speak and understand Portuguese. Results: The original TIME authors fully endorsed the back translated version. A Portuguese version was created. Forty-three participants (response rate of 62%) were included, 53% of whom were male. The average age was 69 years old (range, 60–80 years old). The interviewed elderly strongly felt that the ESEU’s summary captured their essence as a person beyond whatever health problems they might be experiencing (6.8, SD =0.48), heightened their sense of dignity (6.1, SD =1.48), considered important that health care professionals (HCPs) have access to ESEU’s summary (6.6, SD =0.73) and that this information could affect the way HCPs see and care for them (6.4, SD =0.86), rated on a Likert scale: 1 “strongly disagree”–7 “strongly agree”. According to the experts’ evaluations, the translated ESEU Questionnaire was clear, precise, comprehensible and captured important dimensions of personhood. Conclusions: The Questionário ESEU and the PD are clear, precise, comprehensible and well-aligned in terms of measuring aspects of personhood. This measure could add additional value to the patient-healthcare provider relationship, allowing a new perspective on how healthcare professionals perceive patients in suffering, ensuring they acknowledge not just patienthood, but critical dimensions of personhood.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationJulião, M., Courelas, C., Costa, M.J., Santos, N.C., Fareleira, F., Antunes, B., … Chochinov, H.M. (2018). The Portuguese versions of the This Is ME Questionnaire and the Patient Dignity Question: tools for understanding and supporting personhood in clinical care. Annals of Palliative Medicine, 7(Suppl 3), S187-S195pt_PT
dc.identifier.doi10.21037/apm.2018.04.04pt_PT
dc.identifier.eid85055071829
dc.identifier.eissn2224-5839
dc.identifier.issn2224-5820
dc.identifier.pmid29860855
dc.identifier.urihttp://hdl.handle.net/10400.14/26283
dc.identifier.wos000447234500006
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherAME Publishing Companypt_PT
dc.relationPD/0003/2013
dc.relationDoes the use of an electronic tool improve the identification of palliative patients by non-specialised palliative doctors A mixed-methods study to palliative cre in the Portuguese population
dc.relationAvaliação de Programa de Promoção para a Saúde da Criança e da Familia - Crescer em Grande
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectPatient centered outcome measurespt_PT
dc.subjectDignitypt_PT
dc.subjectThis Is ME Questionnaire (TIME Questionnaire)pt_PT
dc.subjectPatient dignity question (PDQ)pt_PT
dc.subjectPersonhoodpt_PT
dc.subjectPortuguese translation and validationpt_PT
dc.titleThe Portuguese versions of the This Is ME Questionnaire and the Patient Dignity Question: tools for understanding and supporting personhood in clinical carept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.awardTitleDoes the use of an electronic tool improve the identification of palliative patients by non-specialised palliative doctors A mixed-methods study to palliative cre in the Portuguese population
oaire.awardTitleAvaliação de Programa de Promoção para a Saúde da Criança e da Familia - Crescer em Grande
oaire.awardURIinfo:eu-repo/grantAgreement/FCT//PD%2FBD%2F113664%2F2015/PT
oaire.awardURIinfo:eu-repo/grantAgreement/FCT/POR_NORTE/PD%2FBD%2F132860%2F2017/PT
oaire.citation.titleAnnals of palliative medicinept_PT
oaire.fundingStreamPOR_NORTE
person.familyNamejulião
person.familyNamecosta
person.familyNameCORREIA SANTOS
person.familyNameFareleira
person.familyNameAntunes
person.familyNameMagalhaes
person.givenNamemiguel
person.givenNamemanuel joao
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project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.identifierhttp://doi.org/10.13039/501100001871
project.funder.nameFundação para a Ciência e a Tecnologia
project.funder.nameFundação para a Ciência e a Tecnologia
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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