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Neste estudo foi nossa pretensão, analisar e compreender a relação fraternal entre irmãos saudáveis e irmãos com deficiência, respondendo às seguintes questões: Quais as modificações sofridas no ciclo de vida familiar? Que
implicações tiveram as mesmas para o desenvolvimento da vida do irmão saudável? Terá um irmão saudável qualidade de vida? O irmão saudável pode em algum momento ter sido prejudicado ou menosprezado pelo sistema familiar e pelos outros sistemas que o envolvem? Fará sentido a fundação de uma associação de apoio não somente às famílias, mas especificamente aos irmãos cuidadores? Após a confrontação dos dados recolhidos concluímos que a qualidade de vida dos irmãos saudáveis é proporcionalmente afetada pela
deficiência do irmão.
In this study, it was our intention to analyze and understand the fraternal relationship between healthy siblings and siblings with disabilities, responding to questions such as: What changes in the family life cycle? What implications did they have for the development of a healthy sibling's life? Will a healthy sibling have quality of life? Can a healthy brother at some point have been harmed or neglected by the family system and other systems that surround him (e.g., society, school, associations)? Will it make sense for the foundation of an association of support not only to families but specifically to sibling caregivers? After comparing the collected data, we conclude that the quality of life of healthy siblings is proportionally affected by their brother's disability.
In this study, it was our intention to analyze and understand the fraternal relationship between healthy siblings and siblings with disabilities, responding to questions such as: What changes in the family life cycle? What implications did they have for the development of a healthy sibling's life? Will a healthy sibling have quality of life? Can a healthy brother at some point have been harmed or neglected by the family system and other systems that surround him (e.g., society, school, associations)? Will it make sense for the foundation of an association of support not only to families but specifically to sibling caregivers? After comparing the collected data, we conclude that the quality of life of healthy siblings is proportionally affected by their brother's disability.
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Deficiência Relações familiares Relação fraternal Qualidade de vida Disability Family relationships Brotherly relation Brotherly relation Quality of life