Publication
Communication and decision making in neonatal intensive care: why narrative medicine matters
| dc.contributor.author | Carvalho, Carmen | |
| dc.contributor.author | Vale, Ana | |
| dc.contributor.author | Magalhães, Susana | |
| dc.date.accessioned | 2024-06-04T16:28:14Z | |
| dc.date.available | 2024-06-04T16:28:14Z | |
| dc.date.issued | 2020-07-23 | |
| dc.description.abstract | Objective: This paper aims to analyse parents’ and health professionals’ discourse, regarding four main areas: (1) the experience of care; (2) communication among all stakeholders; (3) ethical issues; (4) and ethical decision-making. Methodology: The authors collected 62 narratives from health professionals and parents whose newborns have been hospitalized for at least 15 days in the neonatal intensive care unit (NICU). We carried out a qualitative content analysis with the support of NVivo software version 12 Pro. Results: The feelings/emotions are present in a high percentage of narratives (mostly negative ones). Parents´ learning emphasizes coping strategies. Most narratives focus on communicational aspects. Decision-making is referred to in almost half of the narratives. The ethical issues and questions mentioned are mainly related to decision-making. Conclusion: The present study emphasizes narrative relevance in the alignment of parents´ and health professionals´ perspectives to promote therapeutic relationships. | pt_PT |
| dc.description.version | info:eu-repo/semantics/publishedVersion | pt_PT |
| dc.identifier.doi | 10.36367/ntqr.1.2020.104-121 | pt_PT |
| dc.identifier.eid | 85130173773 | |
| dc.identifier.issn | 2184-7770 | |
| dc.identifier.uri | http://hdl.handle.net/10400.14/45387 | |
| dc.language.iso | eng | pt_PT |
| dc.peerreviewed | yes | pt_PT |
| dc.rights.uri | http://creativecommons.org/licenses/by-nc-nd/4.0/ | pt_PT |
| dc.subject | Communication | pt_PT |
| dc.subject | Decision-making | pt_PT |
| dc.subject | Narrative medicine | pt_PT |
| dc.subject | Neonatal intensive care | pt_PT |
| dc.title | Communication and decision making in neonatal intensive care: why narrative medicine matters | pt_PT |
| dc.type | journal article | |
| dspace.entity.type | Publication | |
| oaire.citation.endPage | 121 | pt_PT |
| oaire.citation.startPage | 104 | pt_PT |
| oaire.citation.title | New Trends in Qualitative Research | pt_PT |
| oaire.citation.volume | 1 | pt_PT |
| rcaap.rights | openAccess | pt_PT |
| rcaap.type | article | pt_PT |