Families’ situation of caring for a child with a chronic condition: a mixed methods study

Macêdo, Maísa Mara Lopes; Felizardo, Melissa Joice de Abreu; Henriques, Nayara Luiza; Deodato, Sérgio; Duarte, Elysângela Dittz

Publicação

Families’ situation of caring for a child with a chronic condition: a mixed methods study

2024Artigo científico

dc.contributor.author	Macêdo, Maísa Mara Lopes
dc.contributor.author	Felizardo, Melissa Joice de Abreu
dc.contributor.author	Henriques, Nayara Luiza
dc.contributor.author	Deodato, Sérgio
dc.contributor.author	Duarte, Elysângela Dittz
dc.date.accessioned	2024-03-19T09:12:30Z
dc.date.available	2024-03-19T09:12:30Z
dc.date.issued	2024
dc.description.abstract	Objective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.	pt_PT
dc.description.version	info:eu-repo/semantics/publishedVersion	pt_PT
dc.identifier.doi	10.1590/1980-220x-reeusp-2023-0304en	pt_PT
dc.identifier.doi	10.1590/1980-220X-REEUSP-2023-0304PT
dc.identifier.eid	85187785528
dc.identifier.issn	0080-6234
dc.identifier.pmid	38466905
dc.identifier.uri	http://hdl.handle.net/10400.14/44310
dc.identifier.wos	001184071100001
dc.language.iso	eng	pt_PT
dc.peerreviewed	yes	pt_PT
dc.rights.uri	http://creativecommons.org/licenses/by/4.0/	pt_PT
dc.subject	Family nursing	pt_PT
dc.subject	Pediatric nursing	pt_PT
dc.subject	Family	pt_PT
dc.subject	Child care	pt_PT
dc.subject	Chronic disease	pt_PT
dc.title	Families’ situation of caring for a child with a chronic condition: a mixed methods study	pt_PT
dc.title.alternative	Situação de cuidar de uma criança com condição crônica pelas famílias: estudo de métodos mistos	pt_PT
dc.type	journal article
dspace.entity.type	Publication
oaire.citation.title	Revista da Escola de Enfermagem da USP	pt_PT
oaire.citation.volume	58	pt_PT
rcaap.rights	openAccess	pt_PT
rcaap.type	article	pt_PT