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Ethical challenges of outcome measurement in palliative care clinical practice: a systematic review of systematic reviews

2018Artigo científico Acesso aberto
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dc.contributor.authorPereira, Sandra Martins
dc.contributor.authorHernández-Marrero, Pablo
dc.date.accessioned2018-10-15T17:55:45Z
dc.date.available2018-10-15T17:55:45Z
dc.date.issued2018
dc.description.abstractSeveral outcome measures have been systematically implemented to be used in palliative care. However, routine use in clinical practice is not without ethical challenges, which are not commonly addressed. The objectives of this study are therefore (I) to identify the ethical challenges/issues of outcome measurement in palliative care and (II) to understand how these ethical challenges/issues are addressed in palliative care clinical practice. The study consisted of a systematic review of systematic reviews, which is a type of review that brings together a summary of reviews in one place. We searched PubMed, Web of Science, EBSCOhost searching CINAHL Complete, MEDLINE Complete, Nursing & Allied Health Collection: Comprehensive, Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, Cochrane Methodology Register, Library, Information Science & Technology Abstracts, MedicLatina, from inception to January 2018. Out of 159 articles screened, only two [2] articles were included for analysis. The main ethical challenge/issue identified in these two reviews was cognitive impairment, particularly in patients with dementia. This challenge was addressed via proxy (family carers or health professionals) reporting outcome measurement. Ethical challenges/issues are poorly addressed in the existing systematic reviews about outcome measurement in palliative care clinical practice. Only two systematic reviews addressed ethical challenges/issues, namely cognitive impairment, particularly in persons with dementia. Further research is needed on this subject and to foster the use of outcome measurement among this vulnerable group of patientspt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationPereira, S. M., Hernández-Marrero, P. (2018). Ethical challenges of outcome measurement in palliative care clinical practice: a systematic review of systematic reviews. Annals of Palliative Medicine, 7, sup.3, S207-S218pt_PT
dc.identifier.doi10.21037/apm.2018.06.05
dc.identifier.eid85055072943
dc.identifier.eissn2224-5839
dc.identifier.issn2224-5820
dc.identifier.pmid30180733
dc.identifier.urihttp://hdl.handle.net/10400.14/25774
dc.identifier.wos000447234500008
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherAME Publishing Companypt_PT
dc.relationENSURE NEURON-II/0001/2015
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectEthical issuept_PT
dc.subjectOutcome measurept_PT
dc.subjectPatient reported outcome measurementpt_PT
dc.subjectPalliative carept_PT
dc.subjectSystematic reviewpt_PT
dc.titleEthical challenges of outcome measurement in palliative care clinical practice: a systematic review of systematic reviewspt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPageS218
oaire.citation.startPageS207
oaire.citation.titleAnnals of palliative medicinept_PT
oaire.citation.volume7
person.familyNameMartins Pereira
person.familyNameHernández-Marrero
person.givenNameSandra
person.givenNamePablo
person.identifierN-3873-2015
person.identifier.ciencia-idFA1A-47B9-5AE5
person.identifier.orcid0000-0003-4113-8957
person.identifier.orcid0000-0002-8893-3491
person.identifier.ridN-3890-2015
person.identifier.ridN-3873-2015
person.identifier.scopus-author-id24169551000
person.identifier.scopus-author-id16417188300
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublication60b77242-ab9e-45f4-8f73-3e6b67d68067
relation.isAuthorOfPublication0bcd4bfb-7d66-4cfc-8516-3744378fb35e
relation.isAuthorOfPublication.latestForDiscovery60b77242-ab9e-45f4-8f73-3e6b67d68067

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