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Rethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseases

2020-09-15Journal article Open access
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dc.contributor.authorTziraki, Chariklia
dc.contributor.authorGrimes, Corrina
dc.contributor.authorVentura, Filipa
dc.contributor.authorO'Caoimh, Rónán
dc.contributor.authorSantana, Silvina
dc.contributor.authorZavagli, Veronica
dc.contributor.authorVarani, Silvia
dc.contributor.authorTramontano, Donatella
dc.contributor.authorApóstolo, João
dc.contributor.authorGeurden, Bart
dc.contributor.authorLuca, Vincenzo de
dc.contributor.authorTramontano, Giovanni
dc.contributor.authorRomano, Maria Rosaria
dc.contributor.authorAnastasaki, Marilena
dc.contributor.authorLionis, Christos
dc.contributor.authorRodríguez-Acuña, Rafael
dc.contributor.authorCapelas, Manuel Luís
dc.contributor.authorAfonso, Tânia dos Santos
dc.contributor.authorMolloy, David William
dc.contributor.authorLiotta, Giuseppe
dc.contributor.authorIaccarino, Guido
dc.contributor.authorTriassi, Maria
dc.contributor.authorEklund, Patrik
dc.contributor.authorRoller-Wirnsberger, Regina
dc.contributor.authorIllario, Maddalena
dc.date.accessioned2021-03-17T13:53:57Z
dc.date.available2021-03-17T13:53:57Z
dc.date.issued2020-09-15
dc.description.abstractNon-communicable chronic diseases (NCCDs) are the main cause of morbidity and mortality globally. Demographic aging has resulted in older populations with more complex healthcare needs. This necessitates a multilevel rethinking of healthcare policies, health education and community support systems with digitalization of technologies playing a central role. The European Innovation Partnership on Active and Healthy Aging (A3) working group focuses on well-being for older adults, with an emphasis on quality of life and healthy aging. A subgroup of A3, including multidisciplinary stakeholders in health care across Europe, focuses on the palliative care (PC) model as a paradigm to be modified to meet the needs of older persons with NCCDs. This development paper delineates the key parameters we identified as critical in creating a public health model of PC directed to the needs of persons with NCCDs. This paradigm shift should affect horizontal components of public health models. Furthermore, our model includes vertical components often neglected, such as nutrition, resilience, well-being and leisure activities. The main enablers identified are information and communication technologies, education and training programs, communities of compassion, twinning activities, promoting research and increasing awareness amongst policymakers. We also identified key 'bottlenecks': inequity of access, insufficient research, inadequate development of advance care planning and a lack of co-creation of relevant technologies and shared decision-making. Rethinking PC within a public health context must focus on developing policies, training and technologies to enhance person-centered quality life for those with NCCD, while ensuring that they and those important to them experience death with dignity.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.1017/S1463423620000328pt_PT
dc.identifier.eid85091053992
dc.identifier.issn1463-4236
dc.identifier.pmcPMC7503185
dc.identifier.pmid32928334
dc.identifier.urihttp://hdl.handle.net/10400.14/32247
dc.identifier.wos000569071200001
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectIntegratedpt_PT
dc.subjectMultimorbiditypt_PT
dc.subjectNon-communicable chronic diseases (NCCDs)pt_PT
dc.subjectPalliative carept_PT
dc.subjectPublic healthpt_PT
dc.titleRethinking palliative care in a public health context: addressing the needs of persons with non-communicable chronic diseasespt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.titlePrimary health care research & developmentpt_PT
oaire.citation.volume21pt_PT
person.familyNameO'Caoimh
person.familyNameSantana
person.familyNameTramontano
person.familyNameAlves Apostolo
person.familyNameDe Luca
person.familyNameliotta
person.familyNameIACCARINO
person.familyNameTriassi
person.givenNameRónán
person.givenNameSilvina
person.givenNameDonatella
person.givenNameJoao Luis
person.givenNameVincenzo
person.givenNamegiuseppe
person.givenNameGuido
person.givenNameMaria
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person.identifier.orcid0000-0002-1990-1816
person.identifier.orcid0000-0002-8997-835X
person.identifier.orcid0000-0002-9420-9571
person.identifier.ridA-7702-2010
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rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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