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Spiritual needs of Brazilian children and adolescents with chronic illnesses: a thematic analysis

dc.contributor.authorAlvarenga, Willyane de Andrade
dc.contributor.authorMachado, Júlia Rezende
dc.contributor.authorLeite, Ana Carolina Andrade Biaggi
dc.contributor.authorCaldeira, Sílvia
dc.contributor.authorVieira, Margarida
dc.contributor.authorRocha, Silvana Santiago da
dc.contributor.authorNascimento, Lucila Castanheira
dc.date.accessioned2021-03-02T17:33:06Z
dc.date.available2021-03-02T17:33:06Z
dc.date.issued2021
dc.description.abstractPurpose: To identify the spiritual needs of children and adolescents with chronic illnesses and how these needs are met by health professionals during hospitalization. Design and methods: A qualitative descriptive study was developed with 35 children and adolescents, between 7 and 18 years old, diagnosed with cancer, cystic fibrosis, and type 1 diabetes. Interviews with photo-elicitation were conducted during the hospitalization at a Brazilian public pediatric hospital. Findings were treated using thematic analysis, and the Consolidated Criteria for Reporting Qualitative Research (COREQ) was followed for quality reporting. This research was approved by a research committee. Results: Two themes emerged. The first, entitled ‘Spiritual needs’, encompasses five types of needs: (1) need to integrate meaning and purpose in life; (2) need to sustain hope; (3) need for expression of faith and to follow religious practices; (4) need for comfort at the end of life; and (5) need to connect with family and friends. The second theme was the ‘Definition of spiritual care’. Conclusions: Children and adolescents with chronic illnesses have spiritual needs while in hospital. Meeting these needs is essential for finding meaning, purpose and hope in the experience of living with chronic illnesses and at the end of life, based on their faith, beliefs and interpersonal relationships. But, these needs have not been fully addressed during hospitalization. Practice implications: These results emphasize the need to implement spiritual care when caring for hospitalized pediatric patients, which includes addressing spiritual needs.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationAlvarenga, W. D. A., Machado, J. R., Leite, A. C. A. B., Caldeira, S., Vieira, M., Rocha, S. S. D., & Nascimento, L. C. (2021). Spiritual needs of Brazilian children and adolescents with chronic illnesses: a thematic analysis. Journal of Pediatric Nursing, 60, e39-e45. https://doi.org/10.1016/j.pedn.2021.02.020pt_PT
dc.identifier.doi10.1016/j.pedn.2021.02.020pt_PT
dc.identifier.eid85101664839
dc.identifier.issn0882-5963
dc.identifier.pmid33648836
dc.identifier.urihttp://hdl.handle.net/10400.14/32134
dc.identifier.wos000709578000010
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherElsevierpt_PT
dc.subjectQualitative researchpt_PT
dc.subjectPediatric nursingpt_PT
dc.subjectChildrenpt_PT
dc.subjectChronic diseasept_PT
dc.subjectSpiritualitypt_PT
dc.subjectPhotographpt_PT
dc.titleSpiritual needs of Brazilian children and adolescents with chronic illnesses: a thematic analysispt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPagee45
oaire.citation.startPagee39
oaire.citation.titleJournal of Pediatric Nursingpt_PT
oaire.citation.volume60
person.familyNameALVARENGA
person.familyNameAndrade Biaggi Leite
person.familyNameCaldeira
person.familyNameVieira
person.familyNameSantiago da Rocha
person.givenNameWILLYANE
person.givenNameAna Carolina
person.givenNameSílvia
person.givenNameMargarida
person.givenNameSilvana
person.identifierK-8035-2013
person.identifier.ciencia-idAC1F-FB3D-C6F5
person.identifier.ciencia-idDE15-282C-199F
person.identifier.orcid0000-0001-6114-8293
person.identifier.orcid0000-0003-0262-0441
person.identifier.orcid0000-0002-9804-2297
person.identifier.orcid0000-0002-9439-2804
person.identifier.orcid0000-0002-1325-9631
person.identifier.ridG-5365-2015
person.identifier.ridK-8035-2013
person.identifier.ridN-3761-2013
person.identifier.ridF-4980-2018
person.identifier.scopus-author-id55487193800
person.identifier.scopus-author-id34878021300
person.identifier.scopus-author-id57191885578
rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
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