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Publication . Campos, Luísa Vieira de

O principal objectivo desta obra é proporcionar uma visão compreensiva da investigação teórica e empírica da prestação de cuidados informais à pessoa com doença mental grave. Com a desinstitucionalização dos doentes psiquiátricos, dos hospitais para a comunidade, o sistema familiar passou a ocupar um papel fundamental junto destes doentes, tornando-se no principal recurso assistencial, facto que levou ao reconhecimento de efeitos prejudiciais junto destes cuidadores, normalmente designado por burden familiar. Nos finais dos anos 90, uma nova conceptualização é proposta, em alternativa ao burden. Surge, assim, a experiência de prestação de cuidados, que considera não apenas a repercussão negativa da prestação de cuidados mas, também, o desenvolvimento pessoal positivo, o amadurecimento, o significado de vida que a prestação de cuidados pode promover nas Pessoas que cuidam dos seus familiares doentes.

2009Book

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The paths to negative and positive experiences of informal caregiving in severe mental illness: a study of explanatory models

Publication . Campos, Luísa; Cardoso, Carlos Mota; Marques-Teixeira, João

The experience of caregiving in severe mental illness is a valuable concept for research and clinical practice as it can provide access to the idiosyncratic assessment of negative and positive dimensions of informal caregiving, thus allowing the design of interventions focused on reducing risk factors and promoting protective factors. This study was aimed at testing explanatory models of negative and positive experiences of caregiving considering the role of the caregiver’s perceptions of difficulties, satisfaction, and coping. A convenience sample of 159 informal caregivers of patients with schizophrenia was used in this study. Different variables were considered: (1) perception of difficulties (Caregiver’s Assessment of Difficulties Index); (2) perception of satisfaction (Caregiver’s Assessment of Satisfaction Index); (3) perception of coping (Caregiver’s Assessment of Managing Index); and (4) the experience of caregiving (Experience of Caregiving Inventory). Using structural equation modeling, the results revealed the following: (1) the perception of difficulties and of satisfaction coexist; (2) the negative experiences of caregiving are predominantly explained by the perception of difficulties and of coping with stress; and (3) the positive experiences of caregiving are mainly explained by the perception of sources of intrapersonal satisfaction, while the perception of coping does not have robust predictive value

2019Journal article

Open access