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- Palliative care for patients with heart failure in critical care: scoping reviewPublication . Pousinho, Fábio; Bacalhau, Lúcia; Pontifice Sousa, PatríciaIntroduction: Heart failure is a chronic condition affecting thousands globally. At some stage of their illness, these individuals require critical care. Palliative care is essential throughout the course of the disease. Objective: To map the evidence on palliative care for people with heart failure in critical care. Methods: A scoping review was conducted following the methodology proposed by the Joanna Briggs Institute. Searches were performed in electronic databases: MEDLINE Complete (via EBSCO), CINAHL (via EBSCO), PubMed, Web of Science, and Repositórios Científicos de Acesso Aberto de Portugal (RCAAP, via b-on). Results: 10 sources of evidence were included in this review. The results were grouped into 2 categories-palliative care in the emergency department and palliative care in the intensive care unit. Eight subcategories were identified: identification of the need for palliative care; symptom control; communication, decision-making and advance care planning; management of implantable cardiac devices and ventricular assistance; the dying process; culturally sensitive care; definition of prognosis; bioethical principles and informed consent. Conclusion: Critical care settings are the places where people with heart failure turn to for help with their illness. There are specific interventions for each context that can increase people's quality of life.
- Embracing time: the (dis)comfort of life after allogeneic stem cell transplantsPublication . Bacalhau, Lúcia; Pontifice Sousa, PatríciaAllogeneic Stem Cells Transplantation (ASCT) and, consequently, the chronicity associated with this life event has a growing prevalence and a significant impact on the life and daily life of each person who experiences it. The growing number of ASCT survivors highlights the need to reflect on the unique challenges they face throughout their recovery. To understand the meaning of the encounter with time in the lived experience of comfort for survivors of ASCT. Qualitative approach using van Manen's phenomenology of practice. We uncovered the phenomenon through phenomenological interviews, which integrated narratives and illustrative episodes that reflected the lived experiences of 20 survivors. Descriptions of lived experiences were collected from participants between July 2020 and May 2021. The following themes emerged from the ASCT survivor's lived experience of comfort related to time: giving time to live, time for what is important, time for the future, and living the time of day. This study reveals the importance of time for the survivor, the anguish of the time of discomfort, and creativity in the search to live the time of comfort provided by the ASCT.