Browsing by Author "Pereira, S. Martins"
Now showing 1 - 10 of 29
Results Per Page
Sort Options
- Anticipatory medication in home palliative care: a systematic review of existing practices, challenges and safeguardsPublication . Hernández-Marrero, P.; Pereira, S. Martins
- Anticipatory medication in home palliative care: a systematic review of existing practices, challenges and safeguardsPublication . Hernández-Marrero, P.; Pereira, S. Martins
- Did organizational models and designs of end-of-life care in burn intensive care units change during the COVID-19 pandemic? Professionals’ views and experiencesPublication . Hernández-Marrero, P.; Ribeiro, A. F.; Pereira, S. Martins
- Do adult persons with chronic psychiatric conditions receive fair access to specialist palliative care? Results from a systematic reviewPublication . Pereira, S. Martins; Antunes, B.; Azenha, S.; Hernández-Marrero, P.
- Do adult persons with chronic psychiatric conditions receive fair access to specialist palliative care? Results from a systematic reviewPublication . Pereira, S. Martins; Antunes, B.; Azenha, S.; Hernández-Marrero, P.
- Dying with dignity: conceptual and practical similarities and differences among professionals providing end-of-life carePublication . Pereira, S. Martins; Fradique, E.; Ribeiro, A. F.; Hernández-Marrero, P.
- Empowering leader behaviours: impact on health professionals’ empowerment and commitmentPublication . Hernández-Marrero, P.; Pereira, S. Martins; Lopes, T.; Flint, D. H.Background: The importance of leaders’ behaviours in empowering staff in the workplace is advocated in healthcare management literature. However, there is a lack of empirical evidence linking empowering leadership behaviours with professionals’ sense of workplace empowerment and commitment. Facilitative leadership styles are considered important to redesigning work in palliative care provided in primary care services. Aims: To test a model linking leader-empowering behaviours to health professionals’ perceptions of workplace empowerment and commitment in primary care. Methods: As part of a larger multicenter survey study, a random sample of 209 professionals (nurses and physicians) providing palliative care in primary care settings in two Spanish regions was drawn. Three pre-validated scales were used to measure leader-empowering behaviours, empowerment and commitment. Multiple regression analyses were conducted to test the mediation model. Results: Overall, perceptions of workplace empowerment were significantly related to all dimensions of leader-empowering behaviours. These dimensions were correlated with empowerment and commitment (rs= .31 to .63). Empowerment at least partially mediated the relationship between leader-empowering behaviours and commitment. Empowerment had a significant impact on commitment (β = .64, p < .05). Conclusions: The results of this study highlight the importance of facilitative leaders in creating empowering work environments. Hence, recommendations can be made to ensure that healthcare managers leading primary care teams facilitate the implementation and delivery of palliative care in these settings by promoting professionals’ empowerment and commitment. This study provides encouraging empirical support and guidance for healthcare leaders interested in creating highly-effective work environments that benefit both patients and professionals who care for them within current turbulent healthcare organisations.
- End-of-life care in burn intensive care units: a systematically conducted scoping reviewPublication . Ribeiro, A. F.; Hernández-Marrero, P.; Pereira, S. Martins
- Ethical challenges and decisions at the end-of-life in burn intensive care units. Results from a qualitative interview studyPublication . Pereira, S. Martins; Ribeiro, A. F.; Hernández-Marrero, P.
- Ethical challenges when studying the use of anticipatory medication in home palliative care researchPublication . Hernández-Marrero, P.; Pereira, S. Martins; Feio, M.; Fradique, E.; Neves, S.; Soares, D.; Antunes, B.Background: Patients at the end of life often experience uncontrolled and distressing symptoms, are under-medicated and therefore do not experience adequate relief. Evidence shows that 70 to 90% of patients with advanced cancer experience pain, and symptoms are highly prevalent in the weeks/months before death. Anticipatory prescribing is used to controlling these symptoms and is designed to ensure that medication and medical devices are present at home when needed. Research on the use of anticipatory medication in home palliative care is paramount. However, conducting research with palliative care patients at the end of life raises ethical concerns surrounding research risks in vulnerable populations. Aim: To review and synthetize ethical challenges in performing research with persons receiving anticipatory medication in home palliative care at the end of life. Methods: Systematic review, following PRISMA 2009. Thirteen databases were searched. Inclusion criteria: studies reporting the use of anticipatory medication in home palliative care, in English, German, Spanish and Portuguese. Data were analyzed using both inductive and deductive content analysis. Results, Outcomes and Implications: 5,387 results were returned from initial searches, of which 48 were included in the synthesis. Articles included in the analysis covered a wide breadth of designs and topics. The main ethical challenges identified were: (1) Research recruitment process; and (4) Ethical approval for research involving vulnerable persons. First, ethical challenges surrounding recruitment of patients receiving anticipatory medication in palliative care formed a large part of the evidence. Gatekeeping by carers and professionals was identified as one of the main issues that may impact research participation. Second, risk within the research continuum was a recurrent feature in several articles. Risk was represented from an ethical perspective, as participants, both patients and family carers, were perceived as being physically and psychologically vulnerable. Third, challenges with the informed process were also highlighted and require researchers to gain permission to access potential participants, establish the basis for informed consent, gain initial and ongoing process, and consider requirements for support and feedback. Finally, gaining ethical approval was a major challenge in some studies because of the vulnerability of the participants, palliative care patients at the end of life, and the fact that they are perceived as experiencing a devastating condition. These findings add to the existing literature on palliative care research by identifying and systematizing its main ethical challenges. In order to ensure that palliative care patients are not unnecessarily excluded from participating in relevant research, these findings can build the basis for the development of specific guidelines for involving vulnerable patients and families in research. Conclusions: This systematic review highlights the ethical challenges in performing research with persons receiving anticipatory medication in home palliative care at the end of life. The quality and relevance of future palliative care research requires the development of specific ethical guidelines. Acknowledgments: Fundação Grünenthal.
- «
- 1 (current)
- 2
- 3
- »