Browsing by Author "Catarino, Marta"
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- Desenvolvimento de recursos e estratégias para a auto-gestão apoiada na criança com epilepsia: da incerteza da pandemia às oportunidades de intervir em enfermagemPublication . Catarino, Marta; Charepe, Zaida; Festas, Constança; Soares, Barbara; Santos, Joana; Vieira, João VítorEnquadramento conceptual As crianças e adolescentes que vivem com epilepsia, enfrentam desafios associados à gestão de comportamentos complexos e tendem a ter um ajuste psicossocial insatisfatório, com comprometimento na qualidade de vida1. A autogestão da epilepsia resulta em aumento da autoeficácia e em maior capacitação para lidar com a doença, potenciando uma melhor qualidade de vida1 e menor recorrência aos serviços de saúde2. A pandemia vivenciada criou novos desafios para as crianças no âmbito da autogestão da doença crónica, bem como exigiu que os profissionais de saúde desenvolvessem novas formas de cuidado, estratégias para mitigar as consequências das restrições de atendimentos de saúde a estas crianças e adolescentes3-5 e intervenções promotoras da autogestão. O acompanhamento continuado foi alvo de reajustamento e inovação, recorrendo-se a meios alternativos para qualificar a comunicação entre profissionais e cuidadores6-8. Revelou-se importante identificar na literatura quais os recursos e estratégias mobilizados pelos profissionais de enfermagem, para a promoção da autogestão na criança/adolescente com epilepsia na fase pandémica. Método (tipo de estudo; participantes; procedimentos metodológicos de colheita e análise de dados; aspetos éticos) Este estudo integra uma investigação mais ampla, subordinada à temática “Promoção da auto-gestão (apoiada), da doença crónica, na criança e adolescente com epilepsia”. Esta investigação decorre no âmbito do programa de doutoramento em Enfermagem do Instituto de Ciências da Saúde da Universidade Católica Portuguesa. Recorreu-se nesta etapa à elaboração de uma Scoping Review: “Promotion of Self-Management of Chronic Disease in Children and Teenagers: Scoping Review”. Considerando a identificação de novas questões despoletadas pela pandemia, procedeu-se a uma pesquisa na literatura, com posterior análise teórica e reflexiva, sobre recursos e estratégias mobilizados pelos profissionais de enfermagem, para a promoção da autogestão na criança/adolescente com epilepsia na fase pandémica. A pesquisa foi efetuada nas bases de dados Cihnal e Medline, no período temporal de 2019 a 2022. Foram garantidos os procedimentos éticos inerentes à investigação, nomeadamente no âmbito do rigor metodológico, na referenciação e respeito pelas informações transmitidas pelos autores citados. Resultados Os cuidados de saúde por via remota foram fortalecidos, para que familiares e cuidadores pudessem receber suporte emocional e superar as adversidades associadas à pandemia, bem como manter, no domicílio, os cuidados necessários às crianças/adolescentes com doença crónica, como a epilepsia4. Identificou-se a utilização deste recurso como uma estratégia para mitigar os prejuízos futuros que esta população possa ter no seu desenvolvimento, bem como para estabelecer um vínculo mais próximo com os cuidadores e minimizar situações de stresse emocional no cuidado diário4. Uma das estratégias identificadas e adotada em várias partes do mundo para assegurar a comunicação e manter o prosseguimento da assistência foi o atendimento por teleconsulta6. Identificou-se também a utilização de local help groups para a autogestão da doença crónica, como forma intervenção comunitária, mantendo a proximidade com pares que possuam a mesma patologia. Evidencia-se ainda a relevância de criar novos sistemas digitais de comunicação, aos quais as crianças e famílias possam recorrer para garantir apoio profissional7,8. Conclusões A promoção da autogestão da epilepsia enfatiza o papel da educação do paciente nos cuidados de saúde preventivos, auto-monitorização da doença, gestão terapêutica, construção de planos de ação, gestão emocional, adesão ao tratamento e controle dos sintomas. Durante a crise pandémica, o isolamento e a menor acessibilidade aos cuidados de saúde foram os principais obstáculos à autogestão da doença crónica. Evidenciou-se a importância de desenvolver cuidados prestados à distância através de sistemas de comunicação digital, como forma de fazer face aos períodos de isolamento.
- Promotion of self-management of chronic disease in children and teenagers: scoping reviewPublication . Catarino, Marta; Charepe, Zaida; Festas, ConstançaBackground: The scientific literature describes that self-management of chronic illness leads to improved health outcomes. Knowledge about interventions that promote self-management behaviors in children and teenagers has been poorly clarified. This study aims to map, in the scientific literature, the nature and extent of interventions that promote self-management of chronic disease, implemented and evaluated in contexts of health care provided to children and teenagers. Methods: The guidelines proposed by the Joanna Briggs Institute were followed. The survey was conducted in June 2021, with access to international databases and gray literature, in Portuguese, English, French, and Spanish. Results: Interventions that promote self-management of children and teenagers can be developed through a local contact or through technological means of support for health care. The use of online supports, such as applications or communication platforms, should be parameterized with health professionals, according to the needs of users. Conclusions: The acquisition of self-management skills in pediatrics is a process supported by the family, health professionals and the community, in which the nurse, in partnership, can promote communication and health education through cognitive strategies, behavioral programs included in physical or online programs, adjusted to the patients’ needs.
- Self‐management in children and adolescents with chronic illness: an evolutionary analysis of the conceptPublication . Catarino, Marta; Macedo, Lúcia; Santos, Joana; Charepe, Zaida; Festas, ConstançaAim: To increase conceptual clarity regarding the self-management of school-age children and adolescents with chronic illnesses in a community context. Design: Concept Analysis: Rodgers' evolutionary approach. Data Sources: Search conducted in the Cumulative Index to Nursing and Allied Health Literature, Psychology and Behavioural Sciences Collection, Nursing and Allied Health Collection, Academic Search Complete, Cochrane, Web of Science, Medical Literature Analysis and Retrieval System Online, Scopus, Repositório Científico de Acesso Aberto de Portugal, ProQuest Dissertations and Theses, Joanna Briggs Institute Evidence Synthesis. Thirty-one articles were identified, published between 2004 and 2023. Reporting Method: Followed the Enhancing the Quality and Transparency of Health Research guidelines—Preferred Reporting Items for Systematic Reviews and Meta-Analyses 2020. Results: Self-management in children and adolescents with chronic illness, in school age, in a community context, consists of a process of acquiring knowledge and beliefs that promote the self-efficacy of this population in developing skills to face needs inherent to the health condition. Conclusion: Promoting self-management goes beyond simply educating for skill acquisition. Participants with stronger beliefs in their ability to control their behaviours are more successful in self-management. The activation of resources that position the child as an agent of change is recommended. Implications for the Profession and/or Patient Care: It contributes to the development of strategies that promote self-management across different healthcare disciplines, focusing on education and change, but also on psychological encouragement to foster confidence in change. Impact: Competent self-management during childhood promotes autonomy, empowerment, and control of the condition, with consequent physical and emotional well-being, quality of life, family stability, and social development. No Patient or Public Contribution:There was no direct contribution from patients or the public in this work (literature review).
- The influence of smartphones on adolescent sleep: a systematic literature reviewPublication . Sá, Sofia de; Baião, Ana; Marques, Helena; Marques, Maria do Céu; Reis, Maria José; Dias, Sandra; Catarino, Marta(1) Background: Sleep is considered to be a complex condition for human beings, with the aim of ensuring physical and psychological recovery. Technology, including the cell phone, is a tool for teenagers that ensures they are always available to interact, even at night. This study aims to understand the influence of the use of smartphones on adolescent sleep quality. (2) Methods: The guidelines proposed by the Joanna Briggs Institute were followed. The search was conducted in October 2022 through the EBSCOhost platform, with access to the CINAHL Complete and Medline databases and through the b-On database. (3) Results: The use of electronic equipment plays an important role in adolescents’ lives. There is a negative relationship between the use of electronic equipment, such as smartphones, and sleep, for reducing both the quality and quantity of sleep. There is also a relationship between nighttime smartphone use, insufficient sleep, and mental health problems. (4) Conclusions: The use of new technologies at night causes a change in the behavior of adolescents with repercussions in terms of the quality of sleep and sleep duration and consequent well-being and performance during the day.
- Therapeutic nursing education in promoting self-management of adolescents with type 1 diabetes mellitus: integrative literature reviewPublication . Pereira, Cláudia; Catarino, Marta; Nunes, Ana ClaraDiabetes Mellitus Type I (DM1) is an autoimmune disease, characterized by the total destruction of the beta (β) cells of the islets of Langerhans in the pancreas. This disease can strike people at any age, but it usually develops in children or young adults. Because of the high prevalence of DM1 in the young population, as well as all the difficulties in effective self-management in this population, with very specific characteristics, it is essential to develop therapeutic education interventions, with the aim of acquiring self-management skills. Thus, the main objective of this study is to identify the benefits of therapeutic nursing education interventions in promoting self-management of adolescents with DM1. For this, an Integrative Literature Review was carried out, using the EBSCOhost, PubMed, Scopus and Web of Science platforms. Six articles were eligible. In terms of results, benefits were identified in the health of adolescents, with the use of therapeutic education interventions by nurses, including the control of capillary glycemia, better acceptance of the pathology, improvement in body mass index, increased adherence to the therapeutic regime, a reduction in hospitalizations and complications, contribution to bio-psycho-social well-being and improvement quality of life.
- Vulnerability in children with celiac disease: a scoping review protocolPublication . Macedo, Lúcia; Catarino, Marta; Festas, Constança; Alves, Paulo(1) Background: The scientific literature reports that children with celiac disease (CD) are more susceptible to developing physical, psychological and social problems, conditioning their healthy childhood development. Despite this scientific evidence, the knowledge about determinants of vulnerability for the development of such problems is not consistent. In order to search the literature, a scoping review was conducted to analyse and map the evidence on the sociopsychosomatic vulnerability of children with CD and identify the gaps in this topic. (2) Methods: The methodology proposed by the Joanna Briggs Institute will be adopted and aims to identify studies that meet pre-defined eligibility criteria. The survey will include a range of relevant electronic databases as well as grey literature using related terms such as vulnerability, child and celiac disease. (3) Results: This review will consider any type of quantitative, qualitative and mixed studies and systematic reviews, focusing on dimensions of vulnerability in children with CD. The process of selection of studies, data extraction and analysis will be developed by two independent researchers. A third and fourth researcher will be involved in the study when there is no consensus between the previous researchers, as well as for resolving issues regarding the methodological process. (4) Conclusions: Identifying the determinants of vulnerability in children with CD will help nurses to understand the impact on their childhood development and trace possible gaps. This research is registered on the platform Open Science Framework (OSF).
- Vulnerability in children with celiac disease: findings from a scoping reviewPublication . Macedo, Lúcia; Catarino, Marta; Festas, Constança; Alves, PauloBackground: The scientific literature highlights that children diagnosed with celiac disease (CD) are at a heightened risk of experiencing physical, psychological, and social challenges, impacting their overall healthy childhood development. However, there remains a lack of a clear understanding regarding the factors that contribute to this vulnerability. The purpose of this study is to analyze and map the evidence on the sociopsychosomatic vulnerability of these children and identify gaps in this topic. (2) Methods: Following Joanna Briggs Institute’s guidelines for scoping reviews, we executed a detailed search of key electronic databases and explored the grey literature to capture a broad spectrum of studies. Our focus was on identifying research that looked into the multiple dimensions of vulnerability—physical, psychological, and social—in children with CD. We included a diverse range of study designs as well as systematic reviews, ensuring a comprehensive analysis. The selection process was stringent, utilizing clearly defined inclusion and exclusion criteria. (3) Results: We identified 61 studies that met our inclusion criteria. The review highlighted significant adverse health outcomes in children with CD and elucidated various individual and environmental determinants that influenced these vulnerabilities. It also underscored the lack of assessment tools to evaluate the risk of health problems in this population. (4) Conclusions: The findings underscore a critical need for further research to deepen our understanding of the vulnerabilities associated with CD in children. Developing targeted assessment tools will be crucial in stratifying health risks and enhancing care strategies for this vulnerable population.