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The ethical soundness and relevance of qualitative secondary analysis in palliative care research

dc.contributor.authorPereira, S. Martins
dc.contributor.authorFradique, E.
dc.contributor.authorHernández-Marrero, P.
dc.date.accessioned2020-03-09T18:46:36Z
dc.date.available2020-03-09T18:46:36Z
dc.date.issued2019
dc.description.abstractBackground: Qualitative secondary data analysis consists in the use of existing qualitative data to find answers to research questions that differ from the ones asked in the original research. In palliative care research, the use of qualitative secondary data analysis has been increasing over the last decade. Nevertheless, this research approach is not without methodological or ethical challenges, which need to be addressed in order to ensure its ethical soundness. Aim: To assess and discuss the ethical issues, procedures, soundness and relevance of performing qualitative secondary data analysis in palliative care research. Methods: Systematic review of empirical studies in palliative care, following PRISMA 2009, to identify the main ethical challenges, procedures, soundness and relevance of the secondary use of existing qualitative data. Searches were performed in five databases (PubMed, Web of Science, CINHAHL Complete, Medline e EBSCO Host) in January 2017 and updated in April 2019. Inclusion criteria were: empirical studies conducted in palliative care reporting the use of qualitative secondary data, in English and Portuguese, with full text and references available. Data were analyzed using both inductive and deductive content analysis. Qualitative assessment of included studies and data extraction were performed independently by two members of the research team using proper tools. Results, Outcomes and Implications: A total of 98 results were returned from initial searches, of which 23 were included in the synthesis. The main ethical issues identified in these articles were: (1) autonomy and informed consent for the reuse of data from a previously conducted original study; and (2) privacy, confidentiality and pseudo-anonymization of original data and information. Ethical procedures reported in all the studies were (1) ethics approval from an institutional academic ethics review board for performing the secondary analysis of already existing qualitative data and (2) ethics approval from the original studies. Two articles also thoroughly described the ethical soundness and relevance of their qualitative secondary analysis. This was framed referring to the fact that reusing qualitative data in palliative care research contributed to (1) the protection of vulnerable participants of any potential harm or further intrusion and (2) the prevention of participants’ fatigue due to repeated research participation. Conclusions: This systematic review shows that performing qualitative data analysis in palliative care research is ethically sound and relevant. By exploiting the potential of a rich source of qualitative data and information, qualitative secondary analysis embraces an ethical dimension and diminishes the risk and burden of research fatigue. To be so, palliative care researchers need to provide detailed information on all the ethical procedures and safeguards implemented in their secondary studies.
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationPereira, S. M., Fradique, E., Hernández-Marrero, P. (2019). The ethical soundness and relevance of qualitative secondary analysis in palliative care research. In 7th International Conference on Ethics Education: Conference Proceedings, 22-24 July, Porto, Portugal. (p. 45). Porto: Escola Superior de Enfermagempt_PT
dc.identifier.isbn9789895445417
dc.identifier.urihttp://hdl.handle.net/10400.14/29889
dc.language.isoengpt_PT
dc.peerreviewednopt_PT
dc.publisherEscola Superior de Enfermagem do Portopt_PT
dc.subjectQualitative secondary analysispt_PT
dc.subjectPalliative carept_PT
dc.subjectResearch ethicspt_PT
dc.titleThe ethical soundness and relevance of qualitative secondary analysis in palliative care researchpt_PT
dc.typeconference object
dspace.entity.typePublication
oaire.citation.conferencePlacePorto, Portugalpt_PT
oaire.citation.startPage45pt_PT
oaire.citation.title7th International Conference on Ethics Education: Conference Proceedingspt_PT
person.familyNameMartins Pereira
person.familyNameHernández-Marrero
person.givenNameSandra
person.givenNamePablo
person.identifierN-3873-2015
person.identifier.ciencia-idFA1A-47B9-5AE5
person.identifier.orcid0000-0003-4113-8957
person.identifier.orcid0000-0002-8893-3491
person.identifier.ridN-3890-2015
person.identifier.ridN-3873-2015
person.identifier.scopus-author-id24169551000
person.identifier.scopus-author-id16417188300
rcaap.rightsopenAccesspt_PT
rcaap.typeconferenceObjectpt_PT
relation.isAuthorOfPublication60b77242-ab9e-45f4-8f73-3e6b67d68067
relation.isAuthorOfPublication0bcd4bfb-7d66-4cfc-8516-3744378fb35e
relation.isAuthorOfPublication.latestForDiscovery60b77242-ab9e-45f4-8f73-3e6b67d68067

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