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EpiReumaPt - the study of rheumatic and musculoskeletal diseases in Portugal: a detailed view of the methodology

2015-04-01Journal article Open access
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dc.contributor.authorRodrigues, Ana M.
dc.contributor.authorGouveia, Nélia
dc.contributor.authorCosta, Leonor Pereira da
dc.contributor.authorEusébio, Mónica
dc.contributor.authorRamiro, Sofia
dc.contributor.authorMachado, Pedro
dc.contributor.authorMourão, Ana Filipa
dc.contributor.authorSilva, Inês
dc.contributor.authorLaires, Pedro
dc.contributor.authorSepriano, Alexandre
dc.contributor.authorAraújo, Filipe
dc.contributor.authorCoelho, Pedro Simões
dc.contributor.authorGonçalves, Sónia
dc.contributor.authorZhao, Ana
dc.contributor.authorFonseca, João Eurico
dc.contributor.authorAlmeida, J. M. Caldas de
dc.contributor.authorTavares, Viviana
dc.contributor.authorSilva, José António Pereira da
dc.contributor.authorBarros, Henrique
dc.contributor.authorCerol, Jorge
dc.contributor.authorMendes, Jorge
dc.contributor.authorCarmona, Loreto
dc.contributor.authorCanhão, Helena
dc.contributor.authorBranco, Jaime C.
dc.date.accessioned2021-09-14T16:02:22Z
dc.date.available2021-09-14T16:02:22Z
dc.date.issued2015-04-01
dc.description.abstractRheumatic and musculoskeletal diseases (RMD) are prevalent and leading causes of disability and consumption of healthcare and social resources. EpiReumaPt is a national population-based survey developed by the Portuguese Society of Rheumatology that aimed to estimate the prevalence of RMDs and determine their impact on function, quality of life, mental health and use of healthcare resources. This article describes in detail the design, methodology and planned analyses of EpiReumaPt. Recruitment started in September 2011 and finished in December 2013. This study involved a three-stage approach. The first step was a face-to-face survey performed by trained interviewers at the household of 10,661 subjects who where randomly selected by a stratified multistage sampling. A highly sensitive screening questionnaire for RMDs was used. Secondly, participants who screened positive (64%) for at least one RMD as well as 20% of individuals with a negative screening were invited for assessment by a rheumatologist. In total, 3,877 subjects participated in this second phase, where they were also invited to donate a blood sample to be stored at the Biobanco-IMM. History and physical examination, followed by appropriate laboratory and imaging tests were performed. At the end of the visit, the rheumatologist established a diagnosis. Finally, a team of three experienced rheumatologists reviewed all the clinical data and defined the diagnoses according to previously validated criteria. The EpiReumaPt dataset, containing data from several questionnaires, various clinical measurements and information from laboratory and imaging tests, comprises an invaluable asset for research. The large amount of information collected from each participant and the large number of participants, with a wide age range covering and being representative of the adults from the entire country, makes EpiReumaPt the largest study of RMDs performed in Portugal.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.eid85014464943
dc.identifier.issn0303-464X
dc.identifier.pmid26219965
dc.identifier.urihttp://hdl.handle.net/10400.14/34844
dc.identifier.wos000359030700002
dc.language.isoengpt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.titleEpiReumaPt - the study of rheumatic and musculoskeletal diseases in Portugal: a detailed view of the methodologypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage124pt_PT
oaire.citation.issue2pt_PT
oaire.citation.startPage110pt_PT
oaire.citation.titleActa Reumatologica Portuguesapt_PT
oaire.citation.volume40pt_PT
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person.givenNameAna Maria
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person.givenNamejosé miguel
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person.givenNameJorge M.
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