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Publication
The effect of home palliative care on patient dignity: a scoping review
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Advisor(s)
Abstract(s)
Introduction: Home-based palliative care plays a vital role in preserving the dignity of terminally ill patients and their families. However, the factors influencing this experience from the perspective of patients, family caregivers, and healthcare professionals are not fully understood. Aim: To map existing evidence on the effects of home-based palliative care on patient dignity, considering the perspectives of patients, family caregivers, and health professionals. Methods: A literature search was conducted in PubMed, Scopus, Web of Science, Cochrane, CINAHL, and PsycINFO, including studies published until December 2024. Eligible studies addressed dignity in the context of home-based palliative care. Opinion reports, case reports, and gray literature were excluded. Results: Five studies that used qualitative methods were included. Key factors supporting the preservation of dignity include patient autonomy and self-determination, family support, effective symptom management, and supportive care environments. Challenges include caregiver burden, organizational barriers, and lack of infrastructure in home care services. Conclusion: Home-based palliative care can contribute to preserving patient dignity when structured support is provided and patient autonomy is respected. However, structural and organizational challenges remain significant barriers. Future research should explore strategies to enhance health service integration and caregiver support to promote humane and equitable home-based palliative care.
Description
Keywords
Caregivers Health professionals Home care services Palliative care Patients Respect
Pedagogical Context
Citation
Valentim, F. D. A. C., Oliveira, N. M. S. D., Alves, V. P., & Capelas, M. L. (2025). The effect of home palliative care on patient dignity: a scoping review. Research Square. https://doi.org/10.21203/rs.3.rs-6951421/v1
Publisher
Research Square