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EpiReumaPt: how to perform a national population based study - a practical guide

dc.contributor.authorGouveia, Nélia
dc.contributor.authorRodrigues, Ana M.
dc.contributor.authorRamiro, Sofia
dc.contributor.authorMachado, Pedro
dc.contributor.authorCosta, Leonor Pereira da
dc.contributor.authorMourão, Ana Filipa
dc.contributor.authorSilva, Inês
dc.contributor.authorRego, Tânia
dc.contributor.authorLaires, Pedro
dc.contributor.authorAndré, Rui
dc.contributor.authorMauricio, Luís
dc.contributor.authorRomeu, José C.
dc.contributor.authorTavares, Viviana
dc.contributor.authorCerol, Jorge
dc.contributor.authorCanhão, Helena
dc.contributor.authorBranco, Jaime C.
dc.date.accessioned2021-09-14T15:50:15Z
dc.date.available2021-09-14T15:50:15Z
dc.date.issued2015-04-01
dc.description.abstractBACKGROUND: The aim of this article was to describe and discuss several strategies and standard operating procedures undertaken in the EpiReumaPt study - which was the first Portuguese, national, cross-sectional population-based study of Rheumatic and Musculoskeletal Diseases (RMD). METHODS: The technical procedures, legal issues, management and practical questions were studied, analyzed and discussed with relevant stakeholders. During the 1st phase of EpiReumaPt the coordination team and Centro de Estudos de Sondagens e Opinião (CESOP) worked to recruit and interview 10,661 subjects. The 2nd phase involved the participation of a multidisciplinary team, several local authorities, a specialized vehicle ("mobile unit") and a specific software program for the clinical appointments. The development of specific recruitment strategies improved the participation rate. Blood samples were collected and sent to Biobanco-IMM and to a central lab for immediate measurements. In the 3rd phase the RMD diagnosis were validated by a team of three experienced rheumatologists - clinical data, imaging and lab test results were revised according to previously published classification criteria. CONCLUSION: EpiReumaPt was a nationwide project successfully conducted, which followed critical logistic/coordination and research strategies. EpiReumaPt methodology and coordination could be used as an example for other epidemiologic endeavors and public health policies.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.eid85014460039
dc.identifier.issn0303-464X
dc.identifier.pmid26219966
dc.identifier.urihttp://hdl.handle.net/10400.14/34840
dc.identifier.wos000359030700003
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.titleEpiReumaPt: how to perform a national population based study - a practical guidept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.titleActa Reumatologica Portuguesapt_PT
person.familyNameRodrigues
person.familyNameMachado
person.familyNameLaires
person.givenNameAna Maria
person.givenNamePedro
person.givenNamePedro
person.identifier405554
person.identifier.ciencia-idAE18-DA10-460C
person.identifier.ciencia-idB415-C750-5AAD
person.identifier.orcid0000-0003-2046-8017
person.identifier.orcid0000-0002-8411-7972
person.identifier.orcid0000-0002-1930-7913
person.identifier.ridC-8621-2013
person.identifier.scopus-author-id57189499663
person.identifier.scopus-author-id35243075300
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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relation.isAuthorOfPublication6a0540d0-a9e7-427e-ae0c-aa6d5375c313
relation.isAuthorOfPublicationb0523321-27ff-4373-9acc-5dfe011639e3
relation.isAuthorOfPublication.latestForDiscoverydb619cfe-7dda-4c4a-ab28-9c05c2cd9209

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