Percorrer por autor "Duarte, Elysângela Dittz"
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- Factors that promote and threaten Hope in caregivers of children with chronic conditionsPublication . Henriques, Nayara Luiza; Silva, Juliana Barony da; Charepe, Zaida Borges; Braga, Patrícia Pinto; Duarte, Elysângela DittzObjetivo: identificar quais são os fatores promotores e ameaçadores da Esperança em cuidadores familiares de crianças de 2 a 3 anos com condições crônicas. Método: estudo qualitativo, incluindo 46 cuidadores familiares de crianças com condição crônica de 2 a 3 anos egressas de duas Unidades de Terapia Intensiva Neonatal. A coleta de dados se deu por meio de entrevista semiestruturada orientada pelo Modelo de Intervenção em Ajuda Mútua Promotor de Esperança. Os dados foram submetidos à análise temática dedutiva. Resultados: foram identificados como fatores promotores da Esperança: A experiência compartilhada com membros da rede de apoio social; A relação com a criança; Melhora clínica da criança; Espiritualidade; Orientação positiva para o futuro. Foram identificados como fatores ameaçadores da Esperança: Relações conflituosas e descrença da criança por pessoas próximas; Incertezas sobre o futuro; Inseguranças sobre a capacidade de prestar os cuidados à criança. Conclusão: os fatores ameaçadores da Esperança geraram sofrimento, dor, angústia, ansiedade e solidão nos cuidadores. Os fatores promotores da Esperança geraram conforto, motivação, força e alegria. Os achados possibilitam que Enfermeiros reconheçam as potencialidades e fragilidades dos cuidadores e promovam a adoção de comportamentos promotores de Esperança em cuidadores de crianças com condições crônicas.
- Families’ situation of caring for a child with a chronic condition: a mixed methods studyPublication . Macêdo, Maísa Mara Lopes; Felizardo, Melissa Joice de Abreu; Henriques, Nayara Luiza; Deodato, Sérgio; Duarte, Elysângela DittzObjective: To analyze the meanings attributed by family members to the situation of caring for a child with a chronic condition (CCC), in the light of the Family Management Style Framework (FMSF). Method: A mixed-methods, parallel-convergent study, guided by the FMSF theoretical framework, using the conceptual component “Definition of the Situation”. Fifty-three CCC families took part. Data was collected using a semi-structured interview, a questionnaire to characterize the participants and a Family Management Measure scale. Descriptive and inferential statistical analysis was carried out on the quantitative data and the qualitative data was subjected to deductive thematic analysis. Results: Family members reported a view of normality in relation to CCC, also verified by the Child’s Daily Life scale. However, they indicate the repercussions of the chronic condition on the family, and that they devote more attention and time to meeting the child’s care needs, which was also verified in the View of the Impact of the Condition and Management Effort scales. Conclusion: Families have a positive view of the situation of caring for CCC at home, but point out some negative effects, such as the greater time spent caring for the child.
- Family care of children with chronic conditions in the context of the pandemic by COVID-19Publication . Macedo, Maísa Mara Lopes; Henriques, Nayara Luiza; Deodato, Sérgio; Duarte, Elysângela DittzObjective: to describe how families experienced the care of children in chronic condition during the pandemic by CO-VID-19. Methods: qualitative study, guided by the Family Ma-nagement Style Model, conducted with 24 families of children in chronic condition. The data, collected by telephone contact through semi-structured interviews, were submitted to the-matic analysis. Results: data analysis resulted in three the-matic categories: Changes in the routine of family members; Emotions triggered in family members and children due to the pandemic; and Implications of the pandemic by COVID-19 for the continuity of care. They highlighted: incorporation of hygiene care, social distancing concomitant to domestic and professional activities at home; and feelings of fear and con-cern about the children's health and development and the need for caregivers to provide rehabilitation and support for school activities. Conclusion: it was observed that the pan-demic changed the family routine, produced negative feelings in families, modified care demands and compromised access to services. Contributions to practice: these results contri-bute to the identification of the repercussions of COVID-19 on families and children with chronic conditions and can help establish strategies to reduce the consequences of this pan-demic and other future health emergencies.