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Authors
Abstract(s)
A dignidade exigida no cuidado à pessoa em fase terminal é fundamental para
a decisão de morrer no domicílio. Esta decisão é complexa e depende de um
conjunto de critérios e recursos que promovam a assistência terminal com o rigor
de cuidados de saúde de excelência, do acompanhamento e disponibilidade do
cuidador e familía, mas sobretudo das necessidades e da vontade da pessoa.
Quando são reunidas as condições para a pessoa em fase terminal permanecer
no domicílio é essencial a prestação de cuidados paliativos que deêm resposta às
suas necessidades.
Deste modo, a dissertação estudou as necessidades de cuidados paliativos na
população em contexto de cuidados de saúde primários, com assistência
domiciliária no fim de vida.
A temática principal abordada neste documento diz respeito às necessidades e
recursos disponíveis na comunidade para a família que cuida a pessoa em fase
terminal no domicílio.
Do mesmo modo, espera-se conhecer uma realidade específica, a capacidade, a
dificuldade e as barreiras da família cuidar em fim de vida, revisando as
necessidades e os recursos existentes à disposição das familias e do doente no
domicílio.
Os resultados pertendem descrever a realidade das famílias/cuidadores que
prestam assistência à pessoa em fim de vida no contexto domiciliário através da
vasta literatura existente e demonstram a relevância da proposta do projeto de
retratar “in loco” todos contextos dos cuidados em fim de vida, pelo que se
propõem, posteriormente, um projeto prático com uma investigação quantitativa e
alicerçada nos pressupostos conhecidos para dar a conhecer a situação real e
inferir sobre a eficácia e eficiência dos cuidados paliativos domiciliários, num
ponto de vista global.
Dignity in care for a person in terminal phase is crucial to the decision of dying at home. This decision is complex and depends on a set of criteria and resources that promote the terminal assistance with the rigor of health care excellence, monitoring and availability of caregiver and family, but especially the needs and wishes of the person. When the conditions for the person in terminal phase to stay at home are ensured the providing of palliative care is essential to answer their needs. Therefore, it was studied the needs of palliative cares in population with primary health care in which exist a domiciliary presence in the end of life. The main theme addressed in this document relates to the needs and resources available in the community for families that take care of persons in terminal phase at home. In the same way, it is expected to know a specific reality, the abilities, the difficulties and the barriers felt by the families who care their relatives in end of life, reviewing the needs and existing resources available to the families and the patient at home. The results describe the family's reality who provides assistance to the person in end of life in a domiciliary context. Through the vast existent literature is demonstrated the relevance of the proposal of the project by showing “in loco” all contexts of the cares in end of life and it's proposed a practical design with a quantitative investigation which is rooted in assumptions to make known the real situation and infer about the effectiveness and efficiency of palliative domiciliary cares, in a global perspective.
Dignity in care for a person in terminal phase is crucial to the decision of dying at home. This decision is complex and depends on a set of criteria and resources that promote the terminal assistance with the rigor of health care excellence, monitoring and availability of caregiver and family, but especially the needs and wishes of the person. When the conditions for the person in terminal phase to stay at home are ensured the providing of palliative care is essential to answer their needs. Therefore, it was studied the needs of palliative cares in population with primary health care in which exist a domiciliary presence in the end of life. The main theme addressed in this document relates to the needs and resources available in the community for families that take care of persons in terminal phase at home. In the same way, it is expected to know a specific reality, the abilities, the difficulties and the barriers felt by the families who care their relatives in end of life, reviewing the needs and existing resources available to the families and the patient at home. The results describe the family's reality who provides assistance to the person in end of life in a domiciliary context. Through the vast existent literature is demonstrated the relevance of the proposal of the project by showing “in loco” all contexts of the cares in end of life and it's proposed a practical design with a quantitative investigation which is rooted in assumptions to make known the real situation and infer about the effectiveness and efficiency of palliative domiciliary cares, in a global perspective.
Description
Keywords
Nurs End-of-life Palliative care Home care Need